Beyond Batten Disease Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
15 Sep 2021

Thank You Batten 4 Drew!

September 15, 2021
BeyondBatten
Family Stories
Thank You Batten 4 Drew! A big thank you to Drew, Cara, Mike, and all of the Batten 4 Drew supporters wh...
Read More
9 Sep 2021

BBDF 101 Wins FDA Investigational New Drug Approval to Pursue Clinical Trials

September 9, 2021
BeyondBatten
Research, News, Press Releases
Lyon, 7 September 2021 – Theranexus, a biopharmaceutical company innovating in the treatment of neurologi...
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8 Sep 2021

Project Baby Dillo

September 8, 2021
BeyondBatten
News
BBDF Supports Project Baby Dillo! Learn more about Project Baby Dillo...
Read More
24 Aug 2021

West Austin News: The Boy with the Golden Heart

August 24, 2021
BeyondBatten
A Mother's Story
The Boy with the Golden Heart Juvenile Batten disease is a rare and terminal condition that causes blind...
Read More
18 May 2021

Batten Disease Research- $117 Honorarium Provided

May 18, 2021
BeyondBatten
News
As an organization committed to supporting Batten disease patients and their families, we are writing to...
Read More
20 Apr 2021

Hope on the Green 2021

April 20, 2021
BeyondBatten
Family Stories
For the past 12 years we have been blessed with phenomenal weather, enthusiastic golfers, and energetic v...
Read More
2 Apr 2021

Run to the Sun 2021 Thank You!

April 2, 2021
BeyondBatten
News
A note from Austin Youth Fitness: "Thanks to everyone who participated in the Run to the Sun and David P...
Read More
2 Mar 2021

BBDF Announces Agreement with Actelion Pharmaceuticals Ltd to Provide Drug Product for BBDF-101

March 2, 2021
BeyondBatten
Research, News, Press Releases
Austin, Texas, March 2, 2021 Beyond Batten Disease Foundation (BBDF) is pleased to announce an agreeme...
Read More
5 Feb 2021

BBDF and Theranexus collaborate to publish journal

February 5, 2021
BeyondBatten
Research
BBDF and Theranexus collaborate to publish “Evaluating and modulating TFEB in the control of autophagy: t...
Read More
27 Nov 2020

Manuscript accepted by the journal

November 27, 2020
BeyondBatten
Research, News
NEUROPHARMA: Evaluating and modulating TFEB in the control of autophagy: towards new treatments in CNS di...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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  • Press Releases
  • A Mother's Story
  • BE Project
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Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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