Thank You Batten 4 Drew!
Thank You Batten 4 Drew! A big thank you to Drew, Cara, Mike, and all of the Batten 4 Drew supporters wh...
BBDF 101 Wins FDA Investigational New Drug Approval to Pursue Clinical Trials
Lyon, 7 September 2021 – Theranexus, a biopharmaceutical company innovating in the treatment of neurologi...
Project Baby Dillo
BBDF Supports Project Baby Dillo! Learn more about Project Baby Dillo...
West Austin News: The Boy with the Golden Heart
The Boy with the Golden Heart Juvenile Batten disease is a rare and terminal condition that causes blind...
Batten Disease Research- $117 Honorarium Provided
As an organization committed to supporting Batten disease patients and their families, we are writing to...
Hope on the Green 2021
For the past 12 years we have been blessed with phenomenal weather, enthusiastic golfers, and energetic v...
Run to the Sun 2021 Thank You!
A note from Austin Youth Fitness: "Thanks to everyone who participated in the Run to the Sun and David P...
BBDF Announces Agreement with Actelion Pharmaceuticals Ltd to Provide Drug Product for BBDF-101
Austin, Texas, March 2, 2021 Beyond Batten Disease Foundation (BBDF) is pleased to announce an agreeme...
BBDF and Theranexus collaborate to publish journal
BBDF and Theranexus collaborate to publish “Evaluating and modulating TFEB in the control of autophagy: t...
Manuscript accepted by the journal
NEUROPHARMA: Evaluating and modulating TFEB in the control of autophagy: towards new treatments in CNS di...