Join/Sign Up

Here’s how it works:

Sign up for an advocacy page »

It takes just a minute. Then you’ll have your own personal fundraising page. You will receive an email with your page address and login, with instructions and tools to help you fundraise!

You can then:

  1. Personalize it: You can upload an image or photo and write a personal statement to let your donors know why you’ve joined Beyond Batten Disease Foundation and what motivates you. Tell your story!
  2. Email it: Copy your personal fundraising link and paste it into an email message to family, friends, and colleagues to take them directly to your personal fundraising page.
  3. Facebook it: Click on the Facebook button and post a message on your wall about your efforts. Anyone who follows the link will be sent to your fundraising page.
  4. Tweet it: You can click the Twitter button and send a tweet out to all of your followers.
  5. Blog it: If you click on the embed button, you can copy your personalized code to put on your blog or personal website. Your readers will be able to donate right there on your site.

What happens next?

  1. Each time someone supports the Beyond Batten Disease foundation due to your efforts, we’ll send you an email letting you know and updating you on your fundraising status.
  2. When you get these messages, make sure to thank your friends and click those Facebook and Twitter links again to thank them in public.
  3. Your donors will automatically receive an electronic thank you letter and receipt from the Foundation.
  4. Want to change your personal statement or photo, or to see who has donated through your personal page? Visit your personal Advocacy Center.


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Debby Oatman

Debby Oatman

Debby Oatman is a swim teacher who learned about Batten disease when one of her students was diagnosed at the age of 7. For a long time, Debby wanted to do something to support BBDF and spread awareness. When Debby and her family signed up for the San Francisco Marathon, she pledged to run and raise money in honor of her student. Debby joined Team Beyond Batten and asked her family and friends to make a donation to support her. With the help of her community of supporters, Debby has raised $1,000 in donations. Thank you Debby for running against Batten disease so children can keep on swimming!

Heather Allman

Team Tyler

Heather Allman joined Team Beyond Batten with Team Tyler in 2010. Heather’s son Tyler has juvenile Batten disease and friends in their hometown, Mishawaka, Indiana have been raising money to support Batten disease research. Heather has shared the link to her fundraising page with friends and family all over the country. Her efforts combined with the generous support of her community has resulted in over $4,300 in donations. Thanks to the Allman family for joining the fight against Batten and providing hope for kids all over the world.

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