Thank You for Your Support!

Other Ways to Donate

Your broker can assist you in making a gift of stock via a direct transfer to Beyond Batten Disease Foundation. Giving a gift of publicly traded stock that has increased in value and that you have owned for more than one year may provide greater tax benefits than giving cash. Your charitable income tax deduction is equal to the fair market value of the stock and you avoid paying the capital gains tax on any increase in the current value over the original cost of the stock. You may also save by not incurring brokerage fees because you are transferring ownership rather than selling the stock.

If you would like to donate stock, please email

In-kind goods and services help offest the cost of the foundation’s fundraising and operating expenses. Donations of your valuable talents or materials are always appreciated.

If you have supplies or skills to donate, please download and fill out this form or email us at

Randalls good neighborIf you shop at Randall’s, visit the Courtesy Booth and link your Remarkable Card to Organization #12112. In addition to the many benefits and in-store savings the Remarkable Card offers, Randalls will pay 1% of your total grocery purchases to Beyond Batten Disease Foundation.

Download this form and submit it to the Courtesy Booth next time you’re at Randall’s.

Freytag's FloristFlowers are a great gift for any occasion and they just got even better. As part of the Austin Community Blooms local charity promotion, Freytag’s Florist donates 5% of your purchase at no cost to you when ordering online of by phone. Simply click or mention Austin Community Blooms and Beyond Batten Disease Foundation at checkout.

Shop now!
To shop by phone, call (512) 371-5640 or
toll-free at (800) 252-9145

These inserts are available to for you to mail. Please contact us if you’d like to have some sent to you.


Downloads now available on CD Baby, iTunes & Amazon

Moved by the Benson’s story and the foundation’s work, John Edson wanted to help spread awareness.Turning to what he knows best, music, John gathered some of Austin’s finest musicians to record his family’s favorite lullaby,”Mighty Like A Rose.” Now available for download on CD Baby, iTunes, and Amazon, all sale proceeds benefit BBDF and our efforts to find a cure.

Vocal VersionInstrumental Version

Download from:
CD Baby     iTunes     Amazon

Mighty Like a Rose

Available on Amazon!

Long time family partner, Joe Sikorra has published a book and dedicated a portion of the sales to BBDF. The book is available now on Amazon!


Do you want to get rid of an old vehicle but don’t want to deal with selling it, fixing it or junking it? Consider donating it to BBDF. The donation process is safe and simple. You get rid of your unwanted vehicle and you may qualify for a tax deduction. All while supporting our research efforts. Find out more about donating your unwanted car, boat, motorcycle or RV whether it runs, or not!



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