Other Ways to Donate

Your broker can assist you in making a gift of stock via a direct transfer to Beyond Batten Disease Foundation. Giving a gift of publicly traded stock that has increased in value and that you have owned for more than one year may provide greater tax benefits than giving cash. Your charitable income tax deduction is equal to the fair market value of the stock and you avoid paying the capital gains tax on any increase in the current value over the original cost of the stock. You may also save by not incurring brokerage fees because you are transferring ownership rather than selling the stock.

If you would like to donate stock, please email info@beyondbatten.org.

In-kind goods and services help offest the cost of the foundation’s fundraising and operating expenses. Donations of your valuable talents or materials are always appreciated.

If you have supplies or skills to donate, please download and fill out this form or email us at info@beyondbatten.org.

Double your donation!

You may be able to double your donation to Beyond Batten Disease Foundation. Many employers sponsor matching gift programs to match charitable contributions made by their employees. Gifts from retirees and spouses may also qualify for a match.

Will your employers match your donation to BBDF? We’ve made it easy to find out! Simply search your company name. If your company is listed, be sure to fill out and submit the necessary forms to ensure that your donation goes even further to help eradicate juvenile Batten disease.

Matching Gift and Volunteer Grant information provided by
Powered by Double the Donation

BPKaplan Inc

Liz James DesignsOrder your “Christiane” necklace at Liz James today and $40 will be donated directly to BBDF! The necklace was designed to signify the transition from dark (at Christiane’s diagnosis, hearing no treatment or cure for Batten disease) to the light (a cure for Batten disease). Necklace is only available by request. Call 512.535.7885 or email sales@lizjames.com to order yours today!

AmazonSmile is a simple and automatic way for you to support Beyond Batten Disease Foundation every time you shop, at no cost to you. When you shop at smile.amazon.com, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com. Link your Amazon Smile Account to Beyond Batten Disease Foundation and Amazon will donate a percentage of your purchase price directly to BBDF.

Shop now!

Randalls good neighborIf you shop at Randall’s, visit the Courtesy Booth and link your Remarkable Card to Organization #12112. In addition to the many benefits and in-store savings the Remarkable Card offers, Randalls will pay 1% of your total grocery purchases to Beyond Batten Disease Foundation.

Download this form and submit it to the Courtesy Booth next time you’re at Randall’s.

Freytag's FloristFlowers are a great gift for any occasion and they just got even better. As part of the Austin Community Blooms local charity promotion, Freytag’s Florist donates 5% of your purchase at no cost to you when ordering online of by phone. Simply click or mention Austin Community Blooms and Beyond Batten Disease Foundation at checkout.

Shop now!
To shop by phone, call (512) 371-5640 or
toll-free at (800) 252-9145

give as you getGive as you Get provides an easy way to buy the items you want while making a difference at the same time. When you make a purchase through the Give as you Get website, you can choose for a percentage to be returned to BBDF. You can continue to use your established shopping carts on popular web stores.

Shop now!

Need a great gift idea for teachers, neighbors, colleagues, or relatives? Give the gift of HOPE this holiday by making a donation to help all children and families affected by Batten disease.

When you make a charitable donation to BBDF in honor or memory of your friends or family, we will send you holiday cards uniquely designed by children and families affected by Batten disease for you to give to your gift recipients. These cards are filled with inspiring quotations and holiday recipes sure to spread holiday cheer. In addition, we will send an acknowledgement letter notifying you of your tax deductible contribution.

Gingerbread Man

Gingerbread Man

by Christiane Benson

INSIDE: Recipe for Christiane’s Christmas Cookies


Lights and Stripes

by Will, Steele and Magnus Herndon

Every great dream begins with a dreamer. Always remember, you have within you the strength, the patience, and the passion to reach for the stars to change the world.
-Harriet Tubman

The Grinch

The Grinch

by Garland Benson

“Maybe Christmas, he thought, doesn’t come from a store. Maybe Christmas, perhaps, means a little bit more.”
-The Grinch

Santa Claws

Santa Claws

by Will, Steele and Magnus Herndon

Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you may go.
-Joshua 1:9

Palm Tree


by Tyler Allman

The best and most beautiful things in the world cannot be seen or even touched – they must be felt with the heart. -Helen Keller


Christmas Tree

by Zachary Killinger

Hope shines the brightest in the darkest moments. -Author Unknown

The inside of each card has the quote shown above and includes the acknowledgment of your gift.

These inserts are available to for you to mail. Please contact us if you’d like to have some sent to you.


Downloads now available on CD Baby, iTunes & Amazon

Moved by the Benson’s story and the foundation’s work, John Edson wanted to help spread awareness.Turning to what he knows best, music, John gathered some of Austin’s finest musicians to record his family’s favorite lullaby,”Mighty Like A Rose.” Now available for download on CD Baby, iTunes, and Amazon, all sale proceeds benefit BBDF and our efforts to find a cure.

Vocal VersionInstrumental Version

Download from:
CD Baby     iTunes     Amazon

Mighty Like a Rose

Available on Amazon!

Long time family partner, Joe Sikorra has published a book and dedicated a portion of the sales to BBDF. The book is available now on Amazon!


Do you want to get rid of an old vehicle but don’t want to deal with selling it, fixing it or junking it? Consider donating it to BBDF. The donation process is safe and simple. You get rid of your unwanted vehicle and you may qualify for a tax deduction. All while supporting our research efforts. Find out more about donating your unwanted car, boat, motorcycle or RV whether it runs, or not!



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