Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us

    • About the Foundation

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    • BBDF’s Role and Impact

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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten

    • About Batten Disease

      • What is Batten?
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      • Living with Batten

    • Family Stories

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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • Research

    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening

    • Foundation Driven

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    • For Researchers

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    • Contact Dr. Danielle Kerkovich

      Danielle M. Kerkovich, Ph.D.
      Phone: 202-812-6462
      Email Danielle

  • Get Involved

    • OVERVIEW

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    • UPCOMING EVENTS

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  • Be Project

    • Introducing the

      BBDF BE Project

      a campaign to fund the treatment for Batten disease

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    • Who Will You Be?

      • BE an Amazon
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    • Contact Us

      Beyond Batten Disease Foundation:

      PO Box 50221
      Austin, TX 78763
      Phone: 512-275-2600
      Fax: 512-637-6333
      info@beyondbatten.org

      Submit an Inquiry »

  • BBDF Blog

Volunteer

Beyond Batten Disease Foundation  ⁄  You Can Get Involved in Several Ways  ⁄  Volunteer

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Contact Us

  • 512-275-2600
  • info@beyondbatten.org
  • PO Box 50221
    Austin, TX 78763
  • Mon to Fri - 8:30am to 5:30pm

What’s New?

  • Our Son Ollie – A Mother’s Story September 27, 2018
  • BBDF 101 – Next Steps to Clinical Trials September 24, 2018
  • August Update – Next Step to Clinical Trials September 4, 2018

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