Thank you for your support! If you would like to donate to the Will Herndon Fund, please click here.


Donate by Mail

Download, print and complete this form along with your check.

Donate by Telephone:

Call us at 512-275-2600 to donate over the phone using a credit card.

Donate Through Amazon Smile

Amazon Smile is a simple and automatic way for you to support Beyond Batten Disease Foundation every time you shop, at no cost to you. Link your Amazon Smile Account to Beyond Batten Disease Foundation and Amazon will donate a percentage of your purchase price directly to BBDF.

Donate Through Randall’s Good Neighbor Program

If you shop at Randall’s, visit the Courtesy Booth and link your Remarkable Card to Organization #12112. In addition to the many benefits and in-store savings the Remarkable Card offers, Randalls will pay 1% of your total grocery purchases to Beyond Batten Disease Foundation.

Donate Through Give as you Get

Give as you Get provides an easy way to buy the items you want while making a difference at the same time. When you make a purchase through the Give as you Get website, you can choose for a percentage to be returned to BBDF. You can continue to use your established shopping carts on popular web stores.


Each year we rely on over 100 volunteers who generously lend their time and talents to support us in our mission. If you would like to volunteer, please sign up here.

Create a Fundraising Page

Would you like to run a marathon or complete a triathlon? Sponsor a golf tournament? Host a dinner party? Have your friends and family make a donation in honor of your birthday or other special occasion?

By joining Team Beyond Batten, your effort can help us reach a bigger audience and move closer to our goal of eradicating Batten Disease.


Host an Event

If you would like to have your own event to raise funds for Batten disease research, please complete the following:

  1. Review a copy of our Third-Party Event Guidelines
  2. Submit our Third-Party Event Registration Form for approval

Spread the Word

Share the Beyond Batten Disease Foundation with your friends and family by clicking the social icon(s) of your choice below.


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