About Tyler

When Tyler was born in February 2009, it was one of the best days of our family’s lives. He was adored as the “baby” of the family and spoiled by his two loving older sisters. As he grew, he was active and social and seemed to have unlimited energy. It seemed nothing could slow him down.

Then some things started to change. When he was 5, he suffered his first seizure. A year later, his vision suddenly became very poor. Concerned, we sought to find answers to these unusual changes. In the next year and a half, Tyler would see multiple physicians, have a battery of tests, and be the subject of many consultations by teams of medical professionals.

Finally, there was an answer. Tyler was diagnosed with Juvenile Batten Disease (CLN3), an extremely rare and cruel fatal neurodegenerative disease. Children with juvenile Batten Disease progress normally for the first 5 years. They then start to suffer progressive loss of sight, worsening seizures and eventually loss of motor skills and cognitive state. Ultimately, this disease takes their life in the late teens or twenties. Currently, there is no treatment or cure.

We are devastated.

However, while our hearts are broken, we are incredibly blessed that today, Tyler is in great physical and mental shape and extremely coordinated. Tyler is now 10 and loves playing outside, being with friends and family, enjoys the beach, playground, and swimming. While his vision is declining, he has enough to enjoy riding his bicycle, go-cart, and scooter, and loves to sing and dance. He brings tremendous joy and happiness to his surroundings.

But we know that time is not on our side. Our family and Team Tyler’s Mission is to find a cure and defeat Batten Disease. Donations to Tyler’s Mission go directly to critical research needed to find a cure and stop Batten Disease and keep children like Tyler going strong. As we go through this experience, we ask for your continuous prayers for Tyler and help to defeat this disease.


Follow Tyler


Mission Milestones

A Sister's Story

ContentMy brother, Tyler, has always been the most energetic happy little boy I have ever been around. He never runs out of things to do or things to say... Read more

Veteran's Day Appeal

In the spirit of Veteran's Day celebration and in support of a veteran family in need, please like and/or share this video story with your friends. Read more

2018 Annual Newsletter

We want to take a moment to extend an enormous Thank You for your support this year. Your financial support and especially your prayers have brought us to a point where Hope is becoming a reality. Read more

Tyler's Trip to NIH

Tyler spent 5 days at the National Institute of Health to participate in the CLN3 (Juvenile Batten Disease) Natural History Study.
Read more

Text-to-Donate Campaign

In honor of Tyler's 10th birthday and to help increase awareness of rare diseases, Tyler’s Mission has established a text to donate program towards treatment research against Juvenile Batten Disease (CLN3). You can help by texting TYLER20 to 501501 for $20 donation to help save Tyler and other children from this terrible disease.
Read more

Tyler’s Mission Supporters

Beyond Batten Disease Foundation was founded in 2008 to eradicate juvenile Batten disease by raising awareness and funds for medical research. Beyond Batten’s strategy brings together other affected families to connect communities and resources to achieve the goal. Tyler’s Mission is partnering with BBDF to find a cure for juvenile Batten disease for Tyler and hundreds of other children.

The Be Project is a $6 million campaign to fund the first-ever treatment for juvenile Batten disease. Your contributions are making a difference!


Tyler’s Mission has a raised a total of:


What People Are Saying:

Contributor Comment
Susan Quinn
In memory of Tyler`s loving grandma, Chun Keel.  I`m sure grandma is cheering you on from above!  Go Tyler! Beat Batten!
Ivan Pierce Supporting Tyler’s Mission
Facebook Donations Supporting Tyler’s Mission
Michelle Hur Supporting Tyler’s Mission
H. Kim Go Lions! Go Tyler!
Melanie Johnson Lions
Bo Yang Lions. Dear Tyler, we’re with you to fight this together. Wish you the best! -From Owen’s family.
Christy Kalvaitis 🙂
Michelle Hur Supporting Tyler’s Mission
Joshua Friedman Lions
Barbara Dammeyer Tyler you are a ray of sunshine!
Jed Dammeyer Tyler I miss you buddy! Stay strong and never give up! – Mr. Dammeyer
Etsegenet Getachew Lions
Mary E. Brown Supporting Tyler’s Mission
Ivan Pierce Supporting Tyler’s Mission
Mobile Giving Foundation Janueary 2019 Text to Donate
Facebook Donations Facebook Donations for March 2019
Michelle Hur Supporting Tyler’s Mission
Jonathan Fink Tyler, We always think about you! Your photos/story encourage us. We can`t wait to see you all next time we are home. Enjoy the Spring and get your Dad to take you to an Orioles game! Love, The Finks
Facebook Donations Supporting Tyler’s Mission
Mobile Giving Foundation Text to Donate
Ivan Pierce Supporting Tyler’s Mission
Gil Kim We are still thinking about you. Let`s go Tyler!
Michelle Hur Supporting Tyler’s Mission
Wen-Tswan Chen We love you!—Sarah, Max, and Family
Ivan Pierce Supporting Tyler’s Mission.
Kitty Greenstein The Greensteins are sending our love and hope.
Soo Chung Happy Birthday, Tyler! Praying for Tyler’s miracle and sending you love on your birthday.
Mobile Giving Foundation Text to donate November 2018
Susan Quinn Happy Birthday, Tyler! Keep fighting! We love you. Go Tyler! Beat Batten!
Bruce McKenney Go Tyler! Beat batten! Keep it going. From the McKenney Family
Catherine Carroll Prayers for all families affected by this terrible disease
Yong Kim Supporting Tyler’s Mission
Michelle Hur Supporting Tyler’s Mission
Yong and Soon Kim Supporting Tyler’s Mission
Ann Reidy Keep Fighting!! Go Tyler and Beat Batten. We love you much!
Julie Fowler Supporting Tyler’s Mission
Cynthia Zalesak Dear Kim Family, Love seeing the pictures of Tyler smiling and to know that there is progress being made! Love to you all—Cindy and Zoe Zalesak
Text to Donate Text to Donate for Oct 2018
Facebook Donations Donations for December, 2018
Michelle Hur Supporting Tyler’s Mission
David Echkardt Supporting Tyler’s Mission
Ivan Pierce Supporting Tyler’s Mission
Craft Show Fundraiser Fundraiser benefitting Tyler’s Mission raising $1533
UVA Friends In memory of Chun Keel from the Chung, Han, Hur, Kim, and Lee Families
Mobile Giving Text to donate September 2018
Joseph and Christine Mikrut Supporting Tyler’s Mission
Kurt McPherson Supporting Tyler’s Mission
Kyung-Koo Kang Supporting Tyler’s Mission
Bo Chu Dear Tyler’s family, We’re so deeply sorry about Tyler’s illness. Nothing we can say will make this better, but we’re here for you always. Let’s have hope!—Chu Family
John Golden Supporting Tyler’s Mission
Gi-Bin Han In memory of Tyler’s loving grandmother, Chun Keel.
Soo Kim Tyler, Henni, Elliot and Auntie Kim are cheering for you! We miss you!!
Kaitlyn Bridgers Supporting Tyler’s Mission!
William Calvert Supporting Tyler’s Mission!
Sung Kim Supporting Tyler’s Mission!
Ernest Purkey You got this! Stay positive.
Peter Lanzaro Supporting Tyler’s Mission
Joon Bo Shim In memory of Tyler’s loving grandmother, Chun Keel.
Kyoung Kim Praying for you Tyler. We love you so much. Beat Batten!—Love Grandma and Grandpa Kim from Colorado.
US Naval Academy Alumni Association Korea Chapter Go Tyler and Beat Batten!
Anonymous Donor Supporting Tyler’s Mission!
Heejo and Gi-Bin Han In memory of Tyler’s loving grandmother, Chun Keel.
Cake Pop Fundraiser Fundraiser benefitting Tyler’s Mission raising $612 by Tyler’s Stars “Teens for Tyler”
Brian Yu I just read Jamie’s inspirational story “A Sister’s Story”. God bless Tyler and all members of the Kim family.
Julie Fowler We are rooting for you!!
Young Jong Woo Keep hope in Jesus, Tyler! “By his wounds you have been healed” (1 Peter 2:24)
Ki Hwang Go Tyler! Go Navy!
Eugene Shin In memory of Tyler’s loving grandmother, Chun Keel.
Andrew Yi Supporting Tyler’s Mission!
Song Yu Tyler we love you so much, you got this, beat Batten and show them who’s boss. Love your family in Colorado.
Ki Hyung Kim Go Tyler! Beat Batten!
Taek K. Kim In memory of Tyler’s loving grandmother, Chun Keel.
Celia Hong In memory of Tyler’s loving grandmother, Chun Keel.
Eung Kim In memory of Tyler’s loving grandmother, Chun Keel.
Wonkook Park In memory of Tyler’s loving grandmother, Chun Keel.
Jae Hong Lee In memory of Tyler’s loving grandmother, Chun Keel.
Jung C. Lee In memory of Tyler’s loving grandmother, Chun Keel.
Chong Doo Lee In memory of Tyler’s loving grandmother, Chun Keel.
Jindo Kim In memory of Tyler’s loving grandmother, Chun Keel.
Shannon Chen May the Lord bless you with an overflow of love, strength and comfort of the Holy Spirit in this time. Sending my Love! <3
Don Bulmer Stay strong Tyler! Beat Batten!
Dr. Gil C. Rah In memory of Tyler’s loving grandmother, Chun Keel.
Byong Han Chin In memory of Tyler’s loving grandmother, Chun Keel.
Paul Bae In memory of Tyler’s loving grandmother, Chun Keel.
Yong and Soon Kim In memory of Tyler’s loving grandmother, Chun Keel.
Wan Chung In memory of Tyler’s loving grandmother, Chun Keel.
Elaine Kim Facebook Fundraiser in support of Tyler’s Mission!
Iris Ahn Facebook Fundraiser in support of Tyler’s Mission!
Kathryn Scully Go Tyler, Beat Batten!/td>
Tae Ho Lee In memory of Tyler’s loving grandmother, Chun Keel.
Linda Lee In loving memory of my talented and gracious aunt, Chun Soon Keel. Grandson, Tyler will Go & Beat Batten!
Samuel and Tammy Ham In memory of Tyler’s loving grandmother, Chun Keel.
Ho and Kay Lee In memory of Tyler’s loving grandmother, Chun Keel.
Elaine Kim Facebook birthday fundraiser in support of Tyler’s Mission!
Iris Ahn Facebook fundraiser in support of Tyler’s Mission!
Christine Feit In memory of Tyler’s loving grandmother, Chun Keel.
In-Sop Han In memory of Tyler’s loving grandmother, Chun Keel.
Keith Harnetiaux Stay strong Tyler!
Jesse Wilson Supporting Tyler’s Mission
Patricia Murer Troup 2446 Card Making Fundraiser.
Lucia Buethe Supporting Tyler’s Mission!
Kelly Olson From the University of Colorado Club Baseball Team!
Angela Chong God be with you all.
Tina Chen Supporting Tyler’s Mission!
Microsoft Matching Program Directed by Linh Le in support of Tyler’s Mission!
Allison Esquen-Roca Facebook fundraiser in support of Tyler’s Mission!
Raymond McGrath & Patricia Murer Stock donation in support of Tyler’s Mission!
Harry Dunbrack You’re strong Tyler – you can do this!!!
Carlos Jimenez Supporting Tyler’s Mission!
Adam Paterson Supporting Tyler’s Mission!
Jim and Peggy McNeal Supporting Tyler’s Mission!
Rose Yim Supporting Tyler’s Mission
Mark McMahan Best wishes from Mark and Joanne McMahan USNA ’86, Go Tyler!!
Gabriella Hernandez Supporting Tyler’s Mission
Jennifer Kim Supporting Tyler’s Mission
Class of ’86 Anonymous Donor Gift in support of Tyler’s Mission!
Regency Centers Directed from Thomas D. Metzger in support of Tyler’s Mission
Patrick Morocco Keep fighting Tyler! We will keep you in our prayers!/td>
Micghael Cadwell My best wishes to Tyler and all the Kim family.
Zach Reuss Supporting Tyler’s Mission!
Michael Kenny USNA ’86 classmate. Thoughts and prayers are with you!
Jean-Marc Boullianne Supporting Tyler’s Mission!
Jonathan Ting Supporting Tyler’s Mission
Michael Giaon Tyler, you got this! I know you can beat it! I may not know you, but if you’re anything like your sister, I know you’re awesome and full of joy and fun! Keep on fighting big man!
Victoria Milligan I remember meeting Tyler when he was very young. He probably doesn’t remember me but he always made me smile.

I will be praying for a full recovery!

Youbeen Shim For Tyler and his loving family.
David Pimpo Jim, my wife and I keep Tyler in our prayers. We will also pray for you and your family that God will give you the strength to work through this! We are standing with you and TEAM TYLER!
Jeffrey H. Holyfield We’re with you, Tyler! Stay strong.
Nelson Navarro Jim, your son and all of you and your family are in our prayers. God bless you all!
Dan Gruta Hang in there Tyler! Angels are watching over you.
Joe Lautrup We’re praying for the whole family in this fight.
Brian Solo Supporting Tyler’s Mission
James Kilby Go Tyler!
John Griffin Supporting Tyler’s Mission
John Sommer Keep on keeping on, Tyler! All the best from the Sommer family (John ’86, Jensin ’91, Lael ’19 & Peyton ’21)
Christine Donohue Dear Tyler and Team — Keep up the fight! We are praying for all of you!
Denise Stich Supporting Tyler’s Mission
Linh Le God Bless, Go Tyler
Patrick Grandelli Supporting Tyler’s Mission
Lisa Brennan Tyler, you are very inspiring, and we hope you reach your goal! Good luck and stay strong! Let’s “86” Batten disease! Go Navy! All the best to you and your family! Lisa (Voegels) Brennan
Alan Shaffer Supporting Tyler’s Mission
Curtis Brown Go Tyler!
Andrew Kirkpatrick Supporting Tyler’s Mission
Jeff Layton Go Navy! Beat Batten! Standing strong with you, Tyler & Jim. #NavyFamily
Steven Donofrio God bless you
Sean Cannon Jim, I wish you all the best in this fight and so glad you reached out to your classmates, Sean.
Don Eyres Best wishes from USNA ’86!
Paul Sita Supporting Tyler’s Mission
Brian O’Malley Supporting Tyler’s Mission
Linda Lee Go Tyler, my love and big boy. Huge squeeze hug from all of us. Linda Eemo
Ronnie Elly Go Tyler! Beat Batten! USNA 1986
Fred Beverly Tyler and family, Our prayers are with you. Go Tyler Beat Batten! Fred & Sherry Beverly
Nicholas Connolly Supporting Tyler’s Mission
Paul Lawrence Continue living life to the fullest!
Thomas Metzger Keep fighting, Tyler. Team Navy is behind you!
Daniel Masur Supporting Tyler’s Mission
Brian Quinlan Keep up the good fight!
Nate Schley Supporting Tyler’s Mission!
Christopher Corish Go, Tyler! Beat JBD! The Corishes Christopher ’86, Mary, CJ, and Sean
Gene Burke Supporting Tyler’s Mission!
William Calvert You all have our prayers. Let us know how it goes. Enjoy every moment you all can.
Edward Brown Supporting Tyler’s Mission!
William Sherer Supporting Tyler’s Mission!
Jeffrey Durand Supporting Tyler’s Mission!
Scott Gureck You can beat this, Tyler! GO TYLER! BEAT BATTEN!
Dan & Erin Beldy Supporting Tyler’s Mission!
Anthony Farina Go Tyler! Beat Batten Disease!
E. Keith Jackson Supporting Tyler’s Mission!
Art Hale Tyler – Keep positive. The Hales ’86
Todd Wagner Go Tyler… Beat Batten!!!!
Mark Bayly Praying for your fight!
Robert Bazan Supporting Tyler’s Mission!
Chris Campion Go Tyler!!
Nancy Brooks Go Tyler! Beat Batten!!
Daniel White Go Tyler!
Phillip McLaughlin Supporting Tyler’s Mission!
Dan Moses Supporting Tyler’s Mission!
Gil Kim Supporting Tyler’s Mission!
Garrick Miller We are all in your corner!
Danielle Kreis Sending love and encouragement to your family. Stay strong, Tyler!
Timothy Keating Tyler: We will lift you up in prayer as you fight this disease. -Tim and Wandalee Keating
Tim Richardson Supporting Tyler’s Mission!
James Tranoris Tyler and family, we are thinking of you, keep fighting!
Sally Han Tyler, Jimmy and family, Never Give Up!
Geetha Chandra Supporting Tyler’s Mission!
Alex Kim Sending our thoughts and prayers for Tyler and your family, Uncle Jimmy! Stay strong, and Go Tyler! -Alex &

Alice Kim (Bruce’s Family)

Razu Miah Tyler, Stay Strong! I know you can beat Batten. “Zahir Anjum”
Kimberly Oshirak Our Sincere best wishes in your important mission – Kimberly & Alan Oshirak
Victor Garcia To Tyler and family, Never Give Up!!
Douglas Kim Supporting Tyler’s Mission!
Rebecca Cerince Go Tyler! From the Maceda Family -Ulysses, Rebecca and Matthew
Garrick Miller Sending you our thoughts and prayers. Enjoy life to the fullest and never give up hope.
Mary Beth Brown Keep fighting, Tyler!
Melissa Russell C’mon Tyler, beat Batten! You have your aunt Susan’s payroll team behind you!
Wendy Timmons Supporting Tyler’s Mission
Chuck Woodruff Have faith and stay strong. GO TYLER! BEAT BATTEN! -The Woodruff Family
Kristen Michael Sending lots and lots of love and support to Tyler and his family! Go Tyler!
Bruce McKenney GO TYLER! BEAT BATTEN! The McKenney’s are on your team.
Golnaz Pourparviz Thoughts and prayers for Tyler… true fighter.
Katharina Gath Dear Kim family, we do not know each other personally but I saw the post on my friend’s facebook (Maria Sawicki). I hope you know that people care: Best wishes for Tyler from Germany.
Shakeel Yusuf Stay strong Tyler you can do it.
Vicky Gavino My prayers are with you Tyler. Stay strong. You can beat this.
Maribeth Luftglass GO TYLER! BEAT BATTEN!
Marty Smith Go Tyler!
John Crane Keep swinging Tyler! Cheering you on young man! Best Wishes – The Crane Family
Jeff Haslow Supporting Tyler’s Mission
Robert Beck Go Tyler, Beat Batten!
Erin Summers Prayers for Tyler and his family. Beat Batten!
Mary Keninitz Tyler & Family – Stay Strong, have hope and keep fighting!
Cathy Camacci Go Tyler and family, stay brave. You are helping others by sharing your story and raising awareness to find a care. Our thoughts are with you, the Camacci family.
Julie Fowler Supporting Tyler’s Mission
Ann Kelly Sending love, prayers and encouragement. Stay strong, BEAT BATTEN!
Bruce Kim Go Tyler! Jim, Kyung we are all praying for your family.
Jackie Wozniak Supporting Tyler’s Mission
Cliff Whitehead Keep fighting Tyler! Never give up! You can do it!!
Holly White Supporting Tyler’s Mission
Anne Benton Holding your family close to my heart and believing funding research will find a cure.
Sue Meacham Supporting Tyler’s Mission
Ray Miskowski Supporting Tyler’s Mission
Sean Kae Go Tyler! Beat Batten!
Young Kim We are all rooting for you Tyler!
John Kim Stay strong Tyler! We’re praying and cheering for you!! -John, Eunah, Abe & David
Scott Seeberger Tyler, continue to be a fighter and be strong!
William James Supporting Tyler’s Mission
Jon Fink Be strong Tyler. Our love and prayers are with you always.
Meryem Merzaq Supporting Tyler’s Mission
Kevin Reidy Our prayers are with you Tyler. May the love of family & our lord give you strength to fight Batten disease and develop a treatment soon for Tyler and others. Our love to Tyler and the Kim family.
Eleanor Loughran Go Tyler, you have got friends all over the world sending you love, strength and good thoughts. Beat Batten!
Susan Estes Supporting Tyler’s Mission
Brooke Nicholas Supporting Tyler’s Mission
Tony Park Supporting Tyler’s Mission
Nicole Jensen Supporting Tyler’s Mission
Teresa Denton Love and prayers for these young warriors and their families.
Jane Williams Supporting Tyler’s Mission
Kwan Lee Go Navy! Go Tyler! Fight this disease and win!
Timothy Cormier Supporting Tyler’s Mission
Allison Cormier GO Tyler!! I will be there every day at school encouraging joyful giggles out of that sweet face!
Ivan Pierce Supporting Tyler’s Mission
Laynie Gilida Supporting Tyler’s Mission
Matthew Henry Supporting Tyler’s Mission
Donald Sohn Stay strong Tyler! Many people who you may not know are pulling for you and praying for your full recovery. Each day is one day closer to a cure.
Sonya Courtney Prayers for Tyler – Beat Batten!
Michelle Schneider Sending lots of love and prayers your way!
Young Lim Tyler is in our prayers. All things are possible with God!
Soo Chung We are with you in Tyler’s Mission to beat Batten disease.
SK SK My Love and prayers are with you and your family. May God help us Beat Batten.
Michelle Hur Tyler, keep fighting. We are cheering for you. Our prayers are with you.
Eugene Potente Tyler, stay strong and hang in there! Your father and I went to college together and you can’t find a more loving individual as you well know. Our prayers are with you!
Doug Casserly Supporting Tyler’s Mission
Marvin Park Go Tyler! Beat Batten!
David Levy Dear Kim Family, The word for “life” in Hebrew is “chai.” It has the numerical value in Hebrew of 18. So, many jews give in multiples of 18. In this case, 18*10 or 10 times life.

Find success Tyler.

Karen Winkelman Supporting Tyler’s Mission
David Mee Keep fighting on Tyler!
Jeff Fischer Tyler be strong, prayers are with you.
Suzi Fox We send all of our love and encouragement to Tyler and Family! BEAT BATTEN!
Kyong Kim Praying every day for a cure to stop Batten. May God watch over us as we navigate through this journey. Have faith and stay strong. Go Tyler! Defeat Batten! We love you!
Lori Radcliffe Supporting Tyler’s Mission
Megan Leach Supporting Tyler’s Mission
Scott Braun Supporting Tyler’s Mission
Tanner Reidy You got this Tyler! Keep that head up and charge the mountain. We all love you and can’t wait to see y’all soon. Beat Batten!
Robert Kinder We are grateful to make this donation in honor of Tyler and in support of your family’s fight against this terrible disease. You will be in our hearts and prayers. Love, The Kinder Family
Cindy Zalesak Go Tyler!!!!! The Zalesaks from Highlands Ranch are on your team!
Keaton Reidy Hey Tyler, this is Keaton. We miss you out here and are really pushing for you. We love you so much. Stay positive like you always have!
Ann Reidy We love you guys. We will continue to fight this disease! Let’s find a cure. GO TYLER.


Anne Mitchell You got this Tyler!!
Shawn Finnerty Supporting Tyler’s Mission
Susan Quinn To Tyler’s Mission… Beat Batten!
Michelle McGuire My thoughts and prayers are with all of your family. I’m so sorry to hear this.
Linda Niemann Prayers!
Patty Poticha Tyler and Family, The power of love and prayer are amazing as is a very positive attitude. My prayers will be with you!
Chong Yi Go Tyler! Beat Batten!
The Yu Family Jim, Kyung, Thank you for allowing the Yu family to be faithful companion who will walk the long road to Tyler’s recovery with you. May our lord bless all members of the Kim family with peace.
Jessica Hwang Supporting Tyler’s Mission
Hong Kim Supporting Tyler’s Mission
Mary Beth Kiser Welcome to Beyond Batten Disease Foundation. We thank you for your partnership in bringing a treatment to Tyler and all kids affected by Batten disease.
Brittany Thomas We are excited to work with you to eradicate Batten disease.
Kasandra Keyes Go Tyler! Defeat Batten!

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