Calling all Heroes!

It’s true what they say, “What starts here changes the world.” Garland has enlisted the help of hometown hero and University of Texas quarterback, Sam Ehlinger, to reach more friends so that he can help fund a treatment that could save his sister’s life! Hook ‘Em!

You can make a donation and stay up to date with Garland’s progress at beahero.beyondbatten.org OR you can text HERO to 501501 and $10 will be added to your next phone bill.

Garland Benson: KVUE Daybreak All Star!

Garland Benson was recognized by the ABC News affiliate, KVUE for his efforts to raise $1 million to fund a treatment for his sister, Christiane, who suffers from juvenile Batten disease. Garland has raised almost $227,000 so far and is getting closer every day! Check it out and see how you can #BEaHero today and help fund a treatment for Christiane and all of the other children who suffer from Batten disease. Watch the Video HERE.

Research Update from Dr. Marco Sardiello

BBDF has partnered with Texas Children’s Hospital (TCH) to provide informational videos on the work being done at the Jan and Dan Duncan Neurological Research Institute (NRI) in Houston, TX.

In this video Dr. Marco Sardiello dives into BBDF funded research and the discovery of TFEB and it’s effects on lysosomal storage diseases, including Batten disease.