See the video that Texas Children’s Hospital put out about Christiane and Beyond Batten Disease Foundation and the work being done at the Jan and Dan Duncan Neurological Research Institute.
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Hello! I am deeply moved by the story of your family. I would like to post a link on my Facebook page so that people can donate to your cause. Is there a way for me to do that? My prayers are with your family as you continue on this journey! Most sincerely, Autumn Conkle