28 Jan 2019 Thank you from the Bensons January 28, 2019 BeyondBatten News, BE Project, Videos https://vimeo.com/313404207 Dear Friends, We would like to express our deepest gratitude for your...Read More
28 Jan 2019 4th Annual Run to the Sun – Feb 8 January 28, 2019 BeyondBatten News Join Austin Youth Fitness on February 8th for the 4th Annual Run to the Sun Fun Run benefiting Beyond Bat...Read More
25 Jan 2019 BE Project – Thank You from the Bensons January 25, 2019 BeyondBatten Research, News, BE Project, Family Stories BE Project - Thank you from the Bensons from Beyond Batten Disease Foundation on Vimeo. In 2016, after...Read More
9 Jan 2019 We did it! Thank you from Garland January 9, 2019 BeyondBatten News, BE Project, Videos Dear Friends, Thank you so much for everything y’all have done for me and my family to get to my $...Read More
8 Jan 2019 Garland Benson Reaches His $1M Goal January 8, 2019 BeyondBatten BE Project, Family Stories We did it! Thank you from Garland from Beyond Batten Disease Foundation on Vimeo. Impassioned by his s...Read More
8 Jan 2019 RARE Webinar: An Educational Webinar for the Batten Disease Community January 8, 2019 BeyondBatten News, Videos BBDF recently participated in an informational webinar hosted by Global Genes. Mary Beth Kiser, BBDF Pres...Read More
28 Dec 2018 Good Food, Good Times, and Good People at Honest Mary’s Fundraiser December 28, 2018 BeyondBatten News, BE Project Garland Benson was joined by family and friends as well as members of the community on Tuesday, Dec 18 fo...Read More
28 Dec 2018 Garland Benson Shares His Story on CBS News December 28, 2018 BeyondBatten News, BE Project Garland Benson shared his story with the world last night on CBS News, calling on each of us to help put...Read More
17 Dec 2018 Let’s Welcome Bianca and Her Son, Manuel, to the BBDF Community. December 17, 2018 BeyondBatten Family Stories Bianca Vidal recently wrote to us and was kind enough to let us share her story. Let's give her and her s...Read More
13 Dec 2018 December Update – 22 Days and Oh So Close!! December 13, 2018 BeyondBatten News The Be Project is Beyond Batten Disease Foundation's campaign to raise $6 million to fund the treatment a...Read More