BBDF-101 Announcement
We are excited to announce the following major milestone for BBDF! Theranexus, a publicly-traded European...
A Mother’s Story
Photo by Catherine Sanderson | catherinesanderson.comOn March 28, 2008, my husband Craig and I received t...
2nd Annual Bind Up Batten Golf Charity
Bind Up Batten brought together the community on July 20, 2019, for the 2nd Annual Batten Disease Golf Ch...
We are Austin Interview with Garland Benson
We Are Austin did an interview highlighting Garland Benson and the Be a Hero Campaign Check out his in...
People Magazine: Garland’s One Million Dollar Story
People Magazine has just published an article highlighting Garland's quest to raise a million dollars for...
Beyond Batten Funded Research Professor Awarded
Congratulations to Marco Sardiello, Ph.D. Assistant Professor Molecular &Human Genetics Department, B...
Rare Sisters Hosts First-Ever Expect Miracles 5K
Rare Sisters brought together a community of over 1,000 supporters on Sunday, April 28 for the fund's fir...
Austin Takes a Swing at Batten
Blue skies, sunshine, and near-perfect temperatures provided the ideal setting for the BBDF Youth Leaders...
Battlin’ Batten in Baffin Fishing Tournament Exceeds $400,000 in Total Donations!
Friends and supporters of Beyond Batten Disease Foundation gathered on Sunday, April 7 for the 11th annua...
Jon and Beth Fries Share Their Family’s Story on CBS Denver
Parents and Rare Sisters founders Jon and Beth Fries appeared on CBS Denver on Monday, April 8, where the...