30 Apr 2019 Rare Sisters Hosts First-Ever Expect Miracles 5K April 30, 2019 BeyondBatten News Rare Sisters brought together a community of over 1,000 supporters on Sunday, April 28 for the fund's fir...Read More
16 Apr 2019 Austin Takes a Swing at Batten April 16, 2019 BeyondBatten News Blue skies, sunshine, and near-perfect temperatures provided the ideal setting for the BBDF Youth Leaders...Read More
15 Apr 2019 Battlin’ Batten in Baffin Fishing Tournament Exceeds $400,000 in Total Donations! April 15, 2019 BeyondBatten News Friends and supporters of Beyond Batten Disease Foundation gathered on Sunday, April 7 for the 11th annua...Read More
9 Apr 2019 Jon and Beth Fries Share Their Family’s Story on CBS Denver April 9, 2019 BeyondBatten News Parents and Rare Sisters founders Jon and Beth Fries appeared on CBS Denver on Monday, April 8, where the...Read More
8 Apr 2019 BBDF Welcomes Delaney’s Dream April 8, 2019 BeyondBatten News, Family Stories BBDF is proud to partner with Delaney’s Dream from West Virginia and welcomes them to our family of donor...Read More
7 Apr 2019 Battlin’ Batten in Baffin Fishing Tournament Exceeds $400,000 in Total Donations! April 7, 2019 BeyondBatten News Friends and supporters of Beyond Batten Disease Foundation gathered on Sunday, April 7 for the 10th annua...Read More
26 Mar 2019 Inaugural Batten Bash is a Great Success! March 26, 2019 BeyondBatten News The Jackson, MI community came out in strong support of Bind Up Batten’s inaugural Batten Bash fundraisin...Read More
18 Mar 2019 Get Involved: April Fundraising Events March 18, 2019 BeyondBatten News There are ample opportunities during the month of April to get involved and support BBDF. Make sure to vi...Read More
8 Feb 2019 4th Annual Run to the Sun Fun Run Rescheduled for Friday, Feb. 22, 2019 February 8, 2019 BeyondBatten News Due to the weather conditions (being at or below freezing with wind chill and moisture), the Run to...Read More
7 Feb 2019 BBDF Welcomes Sophia’s Dream February 7, 2019 BeyondBatten News, Family Stories BBDF welcomes Sofia's Dream to our family of donor advised funds. By connecting affected families and com...Read More