Batten Disease Research- $117 Honorarium Provided
As an organization committed to supporting Batten disease patients and their families, we are writing to...
Hope on the Green 2021
For the past 12 years we have been blessed with phenomenal weather, enthusiastic golfers, and energetic v...
Run to the Sun 2021 Thank You!
A note from Austin Youth Fitness: "Thanks to everyone who participated in the Run to the Sun and David P...
BBDF Announces Agreement with Actelion Pharmaceuticals Ltd to Provide Drug Product for BBDF-101
Austin, Texas, March 2, 2021 Beyond Batten Disease Foundation (BBDF) is pleased to announce an agreeme...
BBDF and Theranexus collaborate to publish journal
BBDF and Theranexus collaborate to publish “Evaluating and modulating TFEB in the control of autophagy: t...
Manuscript accepted by the journal
NEUROPHARMA: Evaluating and modulating TFEB in the control of autophagy: towards new treatments in CNS di...
BBDF-101 Announcement
We are excited to announce the following major milestone for BBDF! The FDA has awarded Orphan Drug and R...
The FDA awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundation for BBDF-101
The FDA has awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundati...
Danielle Kerkovich is Recognized
BBDF's principal scientist, Danielle Kerkovich, recieves recognition for her paper as one of the most rea...
Judy and Courtney Stecker establish the Charles “Wheeler” Stecker Research Fund
Judy and Courtney Stecker establish the Charles "Wheeler" Stecker Research Fund to join forces in raising...