My son’s time is running out due to a rare disease. The FDA needs to add more clinical trial flexibility
By Judy Stecker Feb. 28, 2023 My toddler, Wheeler, will probably not live to adulthood. Juvenile Batten...
BBDF Presents at World Symposia 19th Annual Scientify Meeting
BBDF was proud to partner with Theranexus and Engaged Health to present Understanding the Functional Burd...
THERANEXUS, BBDF AND CARDIFF UNIVERSITY PRESENT THEIR NOVEL RESEARCH ON BATTEN-1 AND BATTEN DISEASE AT WORLDSYMPOSIUM 2023
From 22 to 26 February 2023 in Orlando, Florida ▪ Presentation of preclinical data demonstrating how Ba...
NCL Congress Report
BBDF sponsored Ineka Whiteman, PhD to attend the 7th Meeting Translational Research Conference for the Ma...
New Advance to the Theranexus and BBDF Batten-1 Program for Juvenile Batten Disease (CLN3)
Beyond Batten Disease Foundation is excited to share the latest accomplishment on our journey to find a t...
CONGRATULATIONS to the 2022 BDSRA Australia Research Grant Winners!
BBDF & BDSRA Australia are pleased to announce the winners of this year's Research Grant round, with...
BBDF Sponsors BDSRA Australia’s 2022 Family Retreat
A big thank you to Batten Disease Support & Research Association Australia for letting BBDF be a part...
BBDF Sponsors NCL Congress
Thank you NCL Congress for allowing BBDF to be a sponsor this year as they gathered families, scientists,...
Theranexus and BBDF Finalize Recruitment For Phase I/II Trial to Evaluate Batten-1 in Batten Disease
Lyon, France – Austin, Texas, United States – 6 September 2022 – 6 pm CEST - Theranexus, a biopharmaceuti...