15 Sep 2021 Thank You Batten 4 Drew! September 15, 2021 BeyondBatten Family Stories Thank You Batten 4 Drew! A big thank you to Drew, Cara, Mike, and all of the Batten 4 Drew supporters wh...Read More
9 Sep 2021 BBDF 101 Wins FDA Investigational New Drug Approval to Pursue Clinical Trials September 9, 2021 BeyondBatten Research, News, Press Releases Lyon, 7 September 2021 – Theranexus, a biopharmaceutical company innovating in the treatment of neurologi...Read More
8 Sep 2021 Project Baby Dillo September 8, 2021 BeyondBatten News BBDF Supports Project Baby Dillo! Learn more about Project Baby Dillo...Read More
24 Aug 2021 West Austin News: The Boy with the Golden Heart August 24, 2021 BeyondBatten A Mother's Story The Boy with the Golden Heart Juvenile Batten disease is a rare and terminal condition that causes blind...Read More
18 May 2021 Batten Disease Research- $117 Honorarium Provided May 18, 2021 BeyondBatten News As an organization committed to supporting Batten disease patients and their families, we are writing to...Read More
20 Apr 2021 Hope on the Green 2021 April 20, 2021 BeyondBatten Family Stories For the past 12 years we have been blessed with phenomenal weather, enthusiastic golfers, and energetic v...Read More
2 Apr 2021 Run to the Sun 2021 Thank You! April 2, 2021 BeyondBatten News A note from Austin Youth Fitness: "Thanks to everyone who participated in the Run to the Sun and David P...Read More
2 Mar 2021 BBDF Announces Agreement with Actelion Pharmaceuticals Ltd to Provide Drug Product for BBDF-101 March 2, 2021 BeyondBatten Research, News, Press Releases Austin, Texas, March 2, 2021 Beyond Batten Disease Foundation (BBDF) is pleased to announce an agreeme...Read More
5 Feb 2021 BBDF and Theranexus collaborate to publish journal February 5, 2021 BeyondBatten Research BBDF and Theranexus collaborate to publish “Evaluating and modulating TFEB in the control of autophagy: t...Read More
27 Nov 2020 Manuscript accepted by the journal November 27, 2020 BeyondBatten Research, News NEUROPHARMA: Evaluating and modulating TFEB in the control of autophagy: towards new treatments in CNS di...Read More