14 Dec 2022 CONGRATULATIONS to the 2022 BDSRA Australia Research Grant Winners! December 14, 2022 BeyondBatten News BBDF & BDSRA Australia are pleased to announce the winners of this year's Research Grant round, with...Read More
6 Dec 2022 BBDF Sponsors BDSRA Australia’s 2022 Family Retreat December 6, 2022 BeyondBatten News A big thank you to Batten Disease Support & Research Association Australia for letting BBDF be a part...Read More
6 Dec 2022 BBDF Sponsors NCL Congress December 6, 2022 BeyondBatten News Thank you NCL Congress for allowing BBDF to be a sponsor this year as they gathered families, scientists,...Read More
11 Oct 2022 Theranexus and BBDF Finalize Recruitment For Phase I/II Trial to Evaluate Batten-1 in Batten Disease October 11, 2022 BeyondBatten Research, News, Press Releases Lyon, France – Austin, Texas, United States – 6 September 2022 – 6 pm CEST - Theranexus, a biopharmaceuti...Read More
27 Jul 2022 Craig Benson Interview with KHN July 27, 2022 BeyondBatten News BBDF Co-Founder and Board Chair Craig Benson was interviewed by Kaiser Health News for a story focused on...Read More
28 Apr 2022 BBDF 101 Update April 28, 2022 BeyondBatten News, Press Releases BBDF 101 Update Theranexus announced yesterday that it is now, more than ever, committed to support pati...Read More
3 Feb 2022 BBDF-101 PHASE I/II TRIAL UNDERWAY February 3, 2022 BeyondBatten Research, News, Press Releases Lyon, France – Austin, TX, USA - 3 February 2022 – Theranexus, a biopharmaceutical company innovating in...Read More
3 Jan 2022 Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten January 3, 2022 BeyondBatten News The Beyond Batten Disease Foundation (BBDF) is sponsoring Care Beyond Diagnosis in its efforts to draft i...Read More
15 Oct 2021 USNA Class of 1986 Fundraiser for Tyler’s Mission October 15, 2021 BeyondBatten Family Stories USNA Class of 1986 Fundraiser for Tyler's Mission The weekend of 7-10 October marked the 35th Reunion fo...Read More
27 Sep 2021 Beyond Batten Disease Foundation Announces Formal Sponsorship of Care Beyond Diagnosis September 27, 2021 BeyondBatten News, Press Releases Beyond Batten Disease foundation announces formal sponsorship of Care Beyond Diagnosis in effort...Read More