Called to Action
Kristin Armstrong from Runners World writes about running for a purpose. published May 8, 2009 "...Paige...
BBDF Mull Next-Gen Sequencing for Carrier Screening Test
Beyond Batten Disease Foundation Mull Next-Gen Sequencing for Carrier Screening Test published March 10,...
Texas Governor Rick Perry’s PSA on Batten Disease
View in YouTube...
Beyond Batten Disease Foundation Forms to Find Cure for Rare Children’s Disease
Test in Development to Prevent Hundreds of Other Orphan Diseases Austin, Texas – March 4, 2009 – Leading...
A Rare Disease, A Loving Father
A video of a family with two children with Batten disease. View in YouTube...
Orphan Diseases: Calling All Volunteers
by Sharon Begley Newsweek Magazine No child should be born into this world with Batten Disease, which—an...