A Mother’s Story
A Mother’s Story, by Charlotte Benson As I stared out of the window on my flight from Baton Rouge to...
Rare Disease Day – Retailer Support
In honor of Rare Disease Day on February 28th The following retailers are donating a portion of their pro...
Westbank moms hit the road to battle Batten Disease
Three Austin-based runners help spread the word about Batten disease. by Dane Anderson in Westlake Picay...
NIH announced expansion of the Rare Diseases Clinical Research Network
Good news in the fight against Batten Disease and other rare diseases. The NIH announced expansion of the...
BBDF Awards largest research grant to study Juvenile Batten Disease
The Beyond Batten Disease Foundation awards the largest research grant ever made to study juvenile Batten...
Renowned Italian Researcher Dr. Andrea Ballabio Joins Texas Children’s Hospital Neurological Research Institute As Visiting Scientist in Medical Genetics
published September 30, 2009 Team to Focus New Gene Discovery on Developing a Therapy for Batten Disease...
BBDF co-sponsored the annual Batten Disease research conference
In June 2009, the Beyond Batten Disease Foundation co-sponsored the annual Batten Disease research confer...
NIH Announces New Program to Develop Therapeutics for Rare and Neglected Diseases
The National Institutes of Health is launching the first integrated, drug development pipeline to produce...