Thank you to our sponsors who went Above and Beyond
A special THANK YOU to all the sponsors of Above and Beyond: An Evening of Hope, October 24, 2010. Paig...
September 2010
CLICK HERE...
A Time to Inhale
Some things our children say are indelibly etched in our memories, word for word. They make us laugh, the...
Paving the Path to Prevention: $2.5 million gift brings world famous researcher to Texas Children’s
by Sandra Bretting published in 2010 A recent $2.5 million gift to the Jan and Dan Duncan Neurological...
HOPE on the Green Charity Golf Tournament
Dear Friends, I would like to introduce you to our son, Will. He is an outgoing, green-eyed, 7-year old...
A Mother’s Story
A Mother’s Story, by Charlotte Benson As Christiane and I sat doing her homework one afternoon, hopel...
A Legacy For and Beyond Batten Disease
by Kevin Davies in Bio-IT World published March 16, 2010 ‘The day we got Christiane’s diagnosis was a h...
Bridging the Continents in the Battle Against Batten Disease
A Study Started Half a World Away May be the First Step Toward a Cure By Sandra Bretting in Shine, a mag...