Beyond Batten Disease Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

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      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
3 May 2011

Get Movin’ Monday: Beyond Batten Relay

May 3, 2011
BeyondBatten
News
On KTBC Fox 7 Published on May 3, 2011 Ryon Talbot of Pure Austin Fitness and Lance Thompson, a partici...
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28 Apr 2011

April 2011

April 28, 2011
BeyondBatten
News
CLICK HERE...
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25 Apr 2011

Relay Will Help Fight Batten Disease

April 25, 2011
BeyondBatten
News
On KTBC Fox 7 Published on April 25, 2011 The Run to the Sun Relay is a 90 mile race from Mt. Bonnell i...
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31 Jan 2011

Rare Disease Day

January 31, 2011
BeyondBatten
News
In honor of Rare Disease Day, the following retailers and businesses have signed on to donate a portion o...
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14 Jan 2011

New High-Tech Screen Takes Carrier Testing to the Next Level

January 14, 2011
BeyondBatten
News
by Jennifer Couzin-Frankel in Science Magazine published January 14, 2011 In the fall of 2008, Stephen K...
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13 Jan 2011

New Genetic Test Screens Would-Be Parents

January 13, 2011
BeyondBatten
News
by Nell Greenfieldboyce on NPR.org Listen to the story on All Things Considered on NPR published Januar...
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12 Jan 2011

Austin parents of terminally ill child behind discovery that could save many

January 12, 2011
BeyondBatten
News
by Mary Ann Roser in the Austin American Statesman published January 12, 2011 An Austin couple, on a qu...
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12 Jan 2011

New test can detect more than 500 genetic diseases

January 12, 2011
BeyondBatten
News
by Joseph Hall on healthzone.ca When his daughter was five, Craig Benson noticed she was inching nearer...
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12 Jan 2011

BBDF Announces the Development of a Carrier Screening Test to Prevent Nearly 450 Devastating Childhood Genetic Diseases

January 12, 2011
BeyondBatten
News, Press Releases
Study Published in Science Translational Medicine Shows the Average Person Carries 2.8 Gene Mutations Tha...
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30 Nov 2010

November 2010

November 30, 2010
BeyondBatten
News
CLICK HERE...
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Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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