Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

DONATE

Toggle menu

Skip to content
  • About Us
    • About the Foundation

      • Mission and History
      • Board of Directors
      • Staff
      • Founders Circle
    • Funds

      • Alexander’s Fund
      • Bind Up Batten
      • Chase The Cure
      • Delaney’s Dream
      • Hugs for Hudson
      • Iron Will
      • The Isla Edwards Research Fund
      • Nathan’s Batten Battle
      • Rare Sisters
      • Sofia’s Dream
      • Tyler’s Mission
      • Wheelers Warriors Research Fund
      • Will Herndon Fund
    • BBDF’s Role and Impact

      • Latest Updates
      • Batten-1 Treatment
      • The Be Project
      • BE a Hero
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten
    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
      • Batten Map
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening
    • Foundation Driven

      • Our Strategy
      • Research Activities
      • Batten-1
    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources
    • Contact Us

      Beyond Batten Disease Foundation
      Phone: 512.275.2600
      Email Us

  • Get Involved
    • OVERVIEW

      • Donate
      • Create a Fundraising Page
      • Create a Fund
      • Volunteer
    • UPCOMING EVENTS

  • A Mother’s Story
  • BBDF Blog

Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
29 Mar 2012

2nd Annual “Run to the Sun” Overnight Relay Expanded to Accommodate More Runners

March 29, 2012
BeyondBatten
News, Press Releases
Austin, TX -- March 28, 2012 Beyond Batten Disease Foundation today announced expansion of its “Run to th...
Read More
16 Mar 2012

Run to the Sun overnight relay raises money for Beyond Batten

March 16, 2012
BeyondBatten
News
by Pamela LeBlanc on austin360.com published March 16, 2012 Imagine running under a full moon, through...
Read More
25 Feb 2012

February 2012

February 25, 2012
BeyondBatten
News
CLICK HERE...
Read More
20 Feb 2012

Recap: Beyond Batten Disease Foundation’s Date Night With Keith Urban

February 20, 2012
BeyondBatten
News
by Amanda Ivarra on Ask Miss A, Charity Meets Style published February 20, 2012 Like most people, I had...
Read More
12 Feb 2012

Circuit of the Americas Brings in Significant Dollars for Local Charity

February 12, 2012
BeyondBatten
News
published February 12, 2012 This past Friday, Austin-based Beyond Batten Disease Foundation hosted a ben...
Read More
8 Feb 2012

Date Night With Keith Urban Benefits Beyond Batten Disease Foundation

February 8, 2012
BeyondBatten
News
by Amanda Ivarra on Ask Miss A, Charity Meets Style published February 8, 2012 It is a rare and fatal n...
Read More
6 Feb 2012

Keith Urban lends talents to raise money for Austin-based foundation aimed at curing rare genetic disease affecting children

February 6, 2012
BeyondBatten
News
by Meredith Rainey in CultureMap Austin published February 6, 2012 Our job as parents is to protect our...
Read More
3 Feb 2012

Date Night with Keith Urban Auction Preview

February 3, 2012
BeyondBatten
News
LIVE AUCTION PREVIEW Formula 1 Package 2 premium reserved seats for all three days of the Formula 1 Un...
Read More
2 Feb 2012

Date Night: Craig & Charlotte Benson

February 2, 2012
BeyondBatten
News
by Lauren Smith Ford in Tribeza published January 25, 2012 By Day: Founders of the Beyond Batten Diseas...
Read More
1 Feb 2012

The Battle Against Batten Disease

February 1, 2012
BeyondBatten
News
On KTBC Fox 7 Published February 1, 2012 Country Singer Keith Urban will be in Austin on February 10 to...
Read More
1 … 23 24 25 26 27 … 30

Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

Flickr

Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

Join Our Mailing List

Sign up to get interesting news and updates delivered to your inbox.


GO!
Copyright © 2026 Beyond Batten Disease Foundation. All rights reserved. EIN: 26-3223661