Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
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      Beyond Batten Disease Foundation
      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
28 Jan 2013

Faster DNA Testing Helps Diagnose Disease in NICU Babies

January 28, 2013
BeyondBatten
News
by Alice Park on healthland.time.com Fifty hours. That’s how long it now takes to decode and interpret a...
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3 Jan 2013

Beyond the Valley of Death: A Strategic Path Toward a Cure for Batten disease

January 3, 2013
BeyondBatten
News
Beyond Batten Disease Foundation is spearheading a unique, cohesive strategy that incorporates independen...
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21 Dec 2012

December 2012

December 21, 2012
BeyondBatten
News
CLICK HERE...
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11 Dec 2012

BBDF funded genetic test makes cover of TIME magazine

December 11, 2012
BeyondBatten
News
...
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5 Dec 2012

Featured Fundraiser

December 5, 2012
BeyondBatten
News
On Sunday October 21st, 25 girls gathered in Grace and Brynley May's front yard to show support for one o...
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5 Dec 2012

A Mother’s Story

December 5, 2012
BeyondBatten
A Mother's Story
With the holidays approaching, the children and I have decided to decorate our front yard with characters...
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28 Sep 2012

Austin Golfers Join Fight Against Batten Disease at Fourth Annual Hope on the Green Tournament

September 28, 2012
BeyondBatten
News, Press Releases
AUSTIN, TX -- Austin-area golfers are getting ready to take a swing at juvenile Batten disease during the...
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10 Sep 2012

Nearly 700 Expected At Sept. 15 “HOPE Under the Stars Gala” In The Woodlands to Help Fight Juvenile Batten Disease

September 10, 2012
BeyondBatten
News, Press Releases
THE WOODLANDS, TX -- Nearly 700 people are expected to attend one of the Houston area’s most important fu...
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7 Sep 2012

A Mother’s Story

September 7, 2012
BeyondBatten
A Mother's Story
by guest columnist Missy Herndon Three years ago, Missy and Wayne Herndon received the shocking news t...
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7 Sep 2012

Featured Fundraiser

September 7, 2012
BeyondBatten
News
The Gummy Bear Gourmet Lemonade Stand Every child loves a lemonade stand! On August 10th, five precocio...
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Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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