Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

DONATE

Toggle menu

Skip to content
  • About Us
    • About the Foundation

      • Mission and History
      • Board of Directors
      • Staff
      • Founders Circle
    • Funds

      • Alexander’s Fund
      • Bind Up Batten
      • Chase The Cure
      • Delaney’s Dream
      • Hugs for Hudson
      • Iron Will
      • The Isla Edwards Research Fund
      • Nathan’s Batten Battle
      • Rare Sisters
      • Sofia’s Dream
      • Tyler’s Mission
      • Wheelers Warriors Research Fund
      • Will Herndon Fund
    • BBDF’s Role and Impact

      • Latest Updates
      • Batten-1 Treatment
      • The Be Project
      • BE a Hero
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
      • Screening
      • Living with Batten
    • Family Stories

      • Family Videos
      • A Mother’s Story
      • Share your Story
      • Batten Map
    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening
    • Foundation Driven

      • Our Strategy
      • Research Activities
      • Batten-1
    • For Researchers

      • About Funding
      • Forms and Instructions
      • Resources
    • Contact Us

      Beyond Batten Disease Foundation
      Phone: 512.275.2600
      Email Us

  • Get Involved
    • OVERVIEW

      • Donate
      • Create a Fundraising Page
      • Create a Fund
      • Volunteer
    • UPCOMING EVENTS

  • A Mother’s Story
  • BBDF Blog

Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
12 Jun 2013

Ascend Learning Delivers Grant To Beyond Batten Disease Foundation

June 12, 2013
BeyondBatten
News, Press Releases
Ascend Learning announced it has delivered a $17,710 grant to Beyond Batten Disease Foundation (BBDF), an...
Read More
11 Jun 2013

June 2013: BBDF partners with orphan drug specialists to establish path to treatment

June 11, 2013
BeyondBatten
News
We are in an exciting and hopeful place in Batten disease research history. Not very long ago, scientists...
Read More
31 May 2013

Batten Disease Awareness Weekend 2013

May 31, 2013
BeyondBatten
News, Press Releases
Join Beyond Batten Disease Foundation June 1-2 in raising awareness and education about juvenile Batten d...
Read More
20 Apr 2013

JNCL Webinar, Part 1

April 20, 2013
BeyondBatten
News
...
Read More
20 Mar 2013

March 2013

March 20, 2013
BeyondBatten
News
CLICK HERE...
Read More
20 Mar 2013

Nonprofit Hosting Third Annual Overnight Relay Run to the Sun Relay – April 20-21, 2013

March 20, 2013
BeyondBatten
News, Press Releases
Beyond Batten Disease Foundation is pleased to announce its 3rd Annual Run to the Sun Relay that will tak...
Read More
18 Mar 2013

The Blind Vest

March 18, 2013
BeyondBatten
News, A Mother's Story
Have you ever wondered what it would be like if the whole world knew your pain? Would you feel exposed or...
Read More
10 Mar 2013

March 2013: Passion is our driver. Strategy is our compass.

March 10, 2013
BeyondBatten
News
Passion is our driver. Strategy is our compass. With your support, Beyond Batten Disease Foundation (BBDF...
Read More
28 Feb 2013

Collaborative CNS Screening Initiative

February 28, 2013
BeyondBatten
News, Press Releases
Collaborative CNS Screening Initiative (CCSI) Aims to Share Knowledge and Speed Drug Discovery. The Alzhe...
Read More
28 Feb 2013

Nonprofit Funders Unite to Accelerate Fight Against Batten Disease, Granting $1 Million for Research to Develop Treatment and Cure

February 28, 2013
BeyondBatten
News, Press Releases
AUSTIN, TEXAS (February, 2013) The Batten Disease Support and Research Association (BDSRA) and Beyond Bat...
Read More
1 … 20 21 22 23 24 … 30

Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

Flickr

Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

Join Our Mailing List

Sign up to get interesting news and updates delivered to your inbox.


GO!
Copyright © 2026 Beyond Batten Disease Foundation. All rights reserved. EIN: 26-3223661