Overnight Relay from Enchanted Rock to Austin to Save Lives
In the Tarrytown Newsletter Published April 2014 Click here to view the newsletter...
Mark Shultz, Ph.D – BBDF’s first graduating doctor
Your generous donations are supporting inspiring and promising researchers who are committing their caree...
Local boy to be honored at relay to find cure for his fatal disease
published on March 25, 2014 in Woodlands Online THE WOODLANDS, Texas--Rarity is the greatest challenge o...
Beyond Batten Disease Foundation Announces Participation in 2nd Annual “Amplify Austin” Event
In 2008, local Austin couple Charlotte and Craig Benson received the devastating diagnosis that their the...
Aspiring politician aims to spread word on rare childhood diseases
by Stephanie Buckner in Cleveland Advocate published March 14, 2014 Juvenile Batten Disease is an extre...
February 2014
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Going social for Alzheimer’s research
by Jim Cirigliano in Drug Discovery News published January 10, 2014 NEW YORK—The Alzheimer’s Drug Disco...
Overnight run from Enchanted Rock to Austin to Save Lives
How far would you run to save a life? Ten miles? 26.2? Even 50? In late April, 25 teams of runners will r...
“Don’t Let Disease Be Your Grinch This Christmas,” Says Mother of Patient with Batten Disease
"A Mother's Story" by Charlotte Benson republished by The Global Genes Project on December 21, 2013 Wit...
December 2013
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