Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

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      • CLN3 Gene
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      Beyond Batten Disease Foundation
      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
  • BBDF Blog

Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
5 Sep 2014

Making a difference: Beyond Batten Disease Foundation

September 5, 2014
BeyondBatten
News
By Amanda Koziel in Life in the Heights Published September 2014 The Beyond Batten Disease Foundation i...
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5 Sep 2014

Celebrating 5 Years of HOPE: Where There is Will, There is A Way Community gathers at annual HOPE Under the Stars Gala to Cure Fatal Disease

September 5, 2014
BeyondBatten
News
By Bob Gunner in The Paper Published September 4, 2014 THE WOODLANDS, TX (September 4, 2014) - No treat...
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6 Aug 2014

Emily Gimble Launches New Single for Beyond Batten Disease Foundation

August 6, 2014
BeyondBatten
News, Press Releases
Pianist, vocalist and newest member of Asleep at the Wheel, Emily Gimble has a brand new single, “Mighty...
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23 Jul 2014

The New York Stem Cell Foundation Partners with Beyond Batten Disease Foundation to Fight Juvenile Batten Disease

July 23, 2014
BeyondBatten
News, Press Releases
Batten Disease Support and Research Association collaborates to give families the opportunity to particip...
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23 May 2014

May 2014

May 23, 2014
BeyondBatten
News
CLICK HERE...
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22 May 2014

Reciprocity

May 22, 2014
BeyondBatten
A Mother's Story
Mother Theresa once said, “ We are all pencils in the hand of a writing God who is sending a love letter...
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20 May 2014

Teen battles deadly disease, family reaching out to Michiana

May 20, 2014
BeyondBatten
News
By Darla Hernandez on WSBT 22 Published May 8, 2014 New challenge for teen stricken by deadly disease T...
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22 Apr 2014

Cypress family fights to eradicate Batten disease

April 22, 2014
BeyondBatten
News
By Crystal Simmons in The Potpourri - Magnolia Edition Published April 21, 2014 In 1998, Luke Watson wa...
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22 Apr 2014

Longhorns Run Through the Night to Fight Rare Disease

April 22, 2014
BeyondBatten
News
By Chris O'Connell in Alcalde Published April 22, 2014 Christiane Benson is like any other 11-year-old....
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18 Apr 2014

Austin Teacher Uniting Staff with The Run to the Sun Relay to Support Student

April 18, 2014
BeyondBatten
News
By Alexa Harris in Austin Fit Magazine Published April 18, 2014 Later this month, a group of teachers f...
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Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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