Beyond Batten Disease Foundation Joins Innovative Network of Venture Philanthropies
Austin, Texas – May 12, 2015 – Beyond Batten Disease Foundation has become a participating organization o...
5th annual ‘Run to the Sun’ helps girl with rare disease
By Quita Culpepper on KVUE Published on April 10, 2015 AUSTIN - A run will be held this weekend to...
Event to raise awareness about Batten disease
On Fox 7 News Aired April 9, 2015 Watch Video HERE....
Beyond Batten Disease Foundation and the New York Academy of Sciences Release a New Podcast Revealing Innovative Ways to Cure Rare Disease
Austin, Texas – Beyond Batten Disease Foundation (BBDF) and the New York Academy of Sciences (NYAS) are w...
Platform for Engaging Everyone Responsibly Awardees Announced
WASHINGTON, DC - March 24, 2015 - Today Genetic Alliance announced the fifteen awardees for Phase I of it...
March 2015
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Taking Taylor’s story to Texas
By Josh Whitener in The South Charlotte Weekly Published on March 9, 2015 Laura King Edwards can n...
Woodlands family builds support to battle genetic disease
By Lindsay Peyton in The Woodlands Community Extra of The Houston Chronicle Published on February 25,...
Where There is a Will, There is a Way! Charities Partner at The Woodlands Marathon to Bring Hope to Children on World Rare Disease Day
THE WOODLANDS, TEXAS – Feb. 28. – Where there is a Will, there is a way! Meet the inspirational Will Hern...
Beyond Batten Disease Foundation of Texas and Brain Canada Launch New Partnership to Expand Network of Researchers Internationally
Austin, Texas– February 4, 2015 – Beyond Batten Disease Foundation (BBDF) https://beyondbatten.org and Bra...