Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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    • About the Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
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      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
  • BBDF Blog

Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
2 Dec 2015

BBDF Funds Researcher to Study Fundamentals of CLN3 Protein

December 2, 2015
BeyondBatten
News, Press Releases
October 19, 2015 - Austin, TX - Beyond Batten Disease Foundation (BBDF) has begun funding Susan Cotman, P...
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2 Dec 2015

October 2015

December 2, 2015
BeyondBatten
News
CLICK HERE...
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20 Oct 2015

Evotec and Beyond Batten Disease Foundation collaborate to advance emerging therapies to fight juvenile Batten Disease

October 20, 2015
BeyondBatten
News, Press Releases
Hamburg, Germany – 18 October 2015: Evotec AG (Frankfurt Stock Exchange: EVT, TecDAX, ISIN: DE0005664809)...
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5 Oct 2015

Beyond Batten Disease Foundation Kicks Off the First Family Night Fundraising Event at Schlitterbahn Waterpark and Sets the Second Event for September 2016

October 5, 2015
BeyondBatten
News, Press Releases
Austin, Texas – October 5, 2015– The Beyond Batten Disease Foundation celebrated a family-fun night at Sc...
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10 Aug 2015

Growing Up With a Deadline

August 10, 2015
BeyondBatten
News
By Maria Edible on Narratively Published on August 10, 2015 Sammie stares out the window, where the...
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30 Jul 2015

This Austin Mom Is Helping The Fight Against Batten Disease

July 30, 2015
BeyondBatten
News
By Abby Roddel on Austin.com Published on July 24, 2015 Austin mom Charlotte Benson has a 12-year-o...
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15 Jul 2015

Beyond Batten Disease Foundation announces Craig Benson’s appointment to the NRI International Advisory Board

July 15, 2015
BeyondBatten
News, Press Releases
Austin, TX - July 15, 2015 - Beyond Batten Disease Foundation (BBDF) is pleased to announce Craig Benson’...
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9 Jun 2015

Beyond Batten Disease Foundation Renowned Italian Researcher Publishes Groundbreaking Research in Top International Scientific Publication

June 9, 2015
BeyondBatten
News, Press Releases
Austin, Texas – June 9, 2015 – Beyond Batten Disease Foundation (BBDF) announces groundbreaking research...
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3 Jun 2015

May 2015

June 3, 2015
BeyondBatten
News
CLICK HERE...
Read More
29 May 2015

Possible

May 29, 2015
BeyondBatten
A Mother's Story
Have you ever wondered if you are relevant, significant, or if anything you do really matters? Sometimes...
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Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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