Battling Batten Disease: Baton Rouge Parent’s Magazine
Published November 30, 2016 By Madeline Rathle Christiane Benson, 14, loves snow skiing, walking her do...
2015/2016 Annual Report
It's HERE! Click to see the 2015/2016 Annual Report....
Introducing the BE Project
Beyond Batten Disease Foundation is proud to introduce the BE Project! The BE Project is a 24 month, $6 m...
Beyond Batten Disease Foundation, Noah’s Hope, Hope 4 Bridget and Batten Disease Research and Support Association Partner to Support the World’s Largest and most Comprehensive Batten Patient Registry
For Immediate Release Contact: Angela Hale Red Media Group Beyond Batten Disease Foundation, Noah’...
BBDF Research Featured in Houston Chronicle
Six years ago, doctors told Missy and Wayne Herndon their 6-year-old son had a rare genetic disorder. The...
Austin BE First Party featured in Austin 360!
Beyond Batten. First, there’s the house. None other like it in Austin. Dimensional Fund head David Booth ...
Hugs for Hudson and BBDF Join Forces
For Immediate Release Contact: Mary Beth Kiser - 512-275-2600 - mbkiser@beyondbatten.org Amy Phillips -...
March 2016
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December 2015
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BBDF Funds Research at Cardiff University
November 16, 2015 - Austin, TX - Beyond Batten Disease Foundation is supporting research by Dr. Emyr Lloy...