10 Feb 2017 BBDF Funded Research Featured in Nature Communications February 10, 2017 Brittany Thomas News, BE Project BBDF is very proud of the research we have funded over the last 8 years. We are especially honored to ha...Read More
9 Feb 2017 YLC Hosts Family Movie Night! February 9, 2017 Brittany Thomas News Join us for the Youth Leadership Committee’s movie night featuring Cheaper by the Dozen 2, benefiting...Read More
25 Jan 2017 BBDF Welcomes Lauren Trice as Director of The Will Herndon Research Fund January 25, 2017 Brittany Thomas News, Press Releases FOR IMMEDIATE RELEASE Contact: Missy Herndon Founder, The Will Herndon Research Fund hope@willhernd...Read More
5 Jan 2017 Beyond Batten Disease Foundation Announces New Funding for Metabolomics to Drive Biomarker Discovery in juvenile Batten disease January 5, 2017 Brittany Thomas News, Press Releases Beyond Batten Disease Foundation Announces New Funding for Metabolomics to Drive Biomarker Discovery in j...Read More
4 Jan 2017 Battling Batten Disease: Baton Rouge Parent’s Magazine January 4, 2017 Brittany Thomas News Published November 30, 2016 By Madeline Rathle Christiane Benson, 14, loves snow skiing, walking her do...Read More
15 Dec 2016 2015/2016 Annual Report December 15, 2016 Brittany Thomas News, BE Project It's HERE! Click to see the 2015/2016 Annual Report....Read More
21 Nov 2016 Introducing the BE Project November 21, 2016 Brittany Thomas News, BE Project Beyond Batten Disease Foundation is proud to introduce the BE Project! The BE Project is a 24 month, $6 m...Read More
16 Nov 2016 Beyond Batten Disease Foundation, Noah’s Hope, Hope 4 Bridget and Batten Disease Research and Support Association Partner to Support the World’s Largest and most Comprehensive Batten Patient Registry November 16, 2016 Brittany Thomas News, Press Releases, BE Project For Immediate Release Contact: Angela Hale Red Media Group Beyond Batten Disease Foundation, Noah’...Read More
16 Nov 2016 BBDF Research Featured in Houston Chronicle November 16, 2016 Brittany Thomas News, BE Project Six years ago, doctors told Missy and Wayne Herndon their 6-year-old son had a rare genetic disorder. The...Read More
16 Nov 2016 Austin BE First Party featured in Austin 360! November 16, 2016 Brittany Thomas News, BE Project Beyond Batten. First, there’s the house. None other like it in Austin. Dimensional Fund head David Booth ...Read More