Weston and John ask for BBDF donations in lieu of gifts for birthday
We're so grateful to Weston Ezell and his friend, John, for asking for donations to BBDF in lie...
We’ve Reached $3.3 million on the Be Project!
The Be Project is Beyond Batten Disease Foundation's 24-month campaign to raise $6 million to fund the tr...
Hudson Phillips enjoyed a day watching the Columbus Blue Jackets
Hudson Phillips of our affiliate fund, Hugs for Hudson, got to enjoy a day watching the Columbus Blue Jac...
A Mother’s Story: Beyond Fear and Doubt – by Charlotte Benson
Robert Schuller once said, “I’d rather attempt to do something great and fail, than attempt to do nothing...
Youth Leadership Committee Buzz Campaign
The BBDF Youth Leadership Committee has been hard at work on their BUZZ campaign! The committee places sw...
Admirals Club of Austin donates $10,000 to BBDF
We are so grateful for the incredibly generous donation made to Beyond Batten Disease Foundation by the A...
A Brother, A Sister and the Search for a Deadly Disease’s Cure
Below is an article that was written at the beginning of October. It's a great summary of G...
Texas First Lady Cecilia Abbott opens her home to BBDF
We would like to give our heartfelt gratitude to First Lady Cecilia Abbott for opening her home to allow...
Beyond Batten Disease Foundation Annual Report 2016/2017
BBDF's 2016/2017 Annual Report is filled with research updates, inspiration, donor recognition and highli...
Christiane’s Story by Texas Children’s Hospital
See the video that Texas Children's Hospital put out about Christiane and Beyond Batten Disease Foundatio...