BBDF and the Louise H. Batz Foundation bring you Family Night 2018!
In it's 4th year, the annual fall fundraiser, Family Night, is set for Sunday, September 23, 2018 and BBD...
Calling all Heroes!
It's true what they say, "What starts here changes the world." Garland has enlisted the help of homet...
BBDF Welcomes Chase the Cure
BBDF Welcomes Chase the Cure to our family of donor advised funds. By pooling resources and connecting co...
Batten Families Gather at TCH for Research Update
For the first time in foundation history, affected families from all over the world gathered at the Jan a...
BBDF Partners with ThinkGenetic in Support of Mission
Spearheading a unique, cohesive strategy, Beyond Batten Disease Foundation has added ThinkGenetic to its...
Brineura Approval Invigorates Research, Awareness About Other Batten Treatments
Soon after the first-ever therapy for Batten disease was approved by the U.S. Food and Drug Administratio...
Over $70,000 raised in February!
It is an exciting time for the Foundation and our affected families as we near the possibility of a clini...
High Schoolers Taking a Swing at Batten!
The Youth Leadership Committee hosted their first-ever fundraiser at TopGolf in Austin Texas on Sunday, F...
BBDF Welcomes the Bind Up Batten Fund
BBDF Welcomes the Bind Up Batten Fund to our family of donor advised funds. By pooling resources and conn...
Faces of Hope: ABC13 Houston Features Will Herndon
BBDF and the Will Herndon Research Fund would like to thank everyone who tuned into, watched, shared, and...