24 Jan 2018 Austin American Statesman – Austin boy trying to raise $1 million for Batten disease treatment for sister January 24, 2018 Brittany Thomas News, BE Project When his parents set out to raise $6 million in two years to fund a Food and Drug Administration clinical...Read More
18 Jan 2018 KXAN: Teen sets $1M goal to fight sister’s fatal disease January 18, 2018 Brittany Thomas News, BE Project, Videos WATCH THE FULL STORY HERE...Read More
8 Jan 2018 Garland Benson: KVUE Daybreak All Star! January 8, 2018 Brittany Thomas News, BE Project, Videos Garland Benson was recognized by the ABC News affiliate, KVUE for his efforts to raise $1 million to fund...Read More
20 Dec 2017 North Carolina Golf Tournament Raises Close to $10,000 for Batten Research December 20, 2017 Kasandra Keyes News Robert Price hosted a golf tournament at Reedy Creek Golf Course in Four Oaks, NC that raised close to $1...Read More
4 Dec 2017 Weston and John ask for BBDF donations in lieu of gifts for birthday December 4, 2017 Kasandra Keyes News We're so grateful to Weston Ezell and his friend, John, for asking for donations to BBDF in lie...Read More
1 Dec 2017 We’ve Reached $3.3 million on the Be Project! December 1, 2017 Kasandra Keyes News The Be Project is Beyond Batten Disease Foundation's 24-month campaign to raise $6 million to fund the tr...Read More
15 Nov 2017 Hudson Phillips enjoyed a day watching the Columbus Blue Jackets November 15, 2017 Kasandra Keyes News, Videos Hudson Phillips of our affiliate fund, Hugs for Hudson, got to enjoy a day watching the Columbus Blue Jac...Read More
9 Nov 2017 A Mother’s Story: Beyond Fear and Doubt – by Charlotte Benson November 9, 2017 Kasandra Keyes A Mother's Story Robert Schuller once said, “I’d rather attempt to do something great and fail, than attempt to do nothing...Read More
7 Nov 2017 Youth Leadership Committee Buzz Campaign November 7, 2017 Kasandra Keyes News The BBDF Youth Leadership Committee has been hard at work on their BUZZ campaign! The committee places sw...Read More
6 Nov 2017 Admirals Club of Austin donates $10,000 to BBDF November 6, 2017 Kasandra Keyes News We are so grateful for the incredibly generous donation made to Beyond Batten Disease Foundation by the A...Read More