For the first time in foundation history, affected families from all over the world gathered at the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital. The families were able to meet the research team, tour the lab and learn more about BBDF projects. Additionally, the foundation brought in outside experts and researchers to share information about other treatment options on the horizon.
“It meant the world to me to be surrounded by such positive and motivated people. I am just in awe of Beyond Batten and all of your collaborators. You have given us such real hope.” Family Attendee

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