Garland Benson Reaches His $1M Goal
We did it! Thank you from Garland from Beyond Batten Disease Foundation on Vimeo. Impassioned by his s...
RARE Webinar: An Educational Webinar for the Batten Disease Community
BBDF recently participated in an informational webinar hosted by Global Genes. Mary Beth Kiser, BBDF Pres...
Good Food, Good Times, and Good People at Honest Mary’s Fundraiser
Garland Benson was joined by family and friends as well as members of the community on Tuesday, Dec 18 fo...
Garland Benson Shares His Story on CBS News
Garland Benson shared his story with the world last night on CBS News, calling on each of us to help put...
Let’s Welcome Bianca and Her Son, Manuel, to the BBDF Community.
Bianca Vidal recently wrote to us and was kind enough to let us share her story. Let's give her and her s...
December Update – 22 Days and Oh So Close!!
The Be Project is Beyond Batten Disease Foundation's campaign to raise $6 million to fund the treatment a...
Dr. Marco Sardiello’s Research on Batten Disease Paves Way for New Treatments
A team led by researchers at Baylor College of Medicine has uncovered an unexpected mechanism that can ex...
Thank You to FOX 7 News’s Amanda Salinas for Sharing Garland’s Story!
Learn about Garland Benson's BE a Hero campaign to raise a million dollars to fund a treatment for his si...
Tree Planting
On Saturday morning, the weather was perfect just long enough for the Bensons to share some beautiful wor...
Anyone Can Be A Hero
Thank you to all who have supported Garland. $790,466 and counting to $1 million!...