14 Jul 2018 Be a Hero on Fox 7 Austin July 14, 2018 Brittany Thomas News, BE Project An Austin 13-year-old is determined to find a cure for a rare & fatal disease in order to save his si...Read More
6 Jul 2018 FDA Meeting Update July 6, 2018 Brittany Thomas News, BE Project In May BBDF had its first meeting with the FDA to get input and direction on our plan for clinical trials...Read More
5 Jul 2018 June Update – Only 6 months to go! July 5, 2018 Brittany Thomas News, BE Project Only 6 months until we wrap up our first ever capital campaign to fund the treatment for juvenile Batten...Read More
12 Jun 2018 In the News! June 12, 2018 Brittany Thomas News 2018 has been filled with fundraising, partnership and advocacy here at BBDF. With that said we wanted to...Read More
8 Jun 2018 BBDF and the Louise H. Batz Foundation bring you Family Night 2018! June 8, 2018 Brittany Thomas News In it's 4th year, the annual fall fundraiser, Family Night, is set for Sunday, September 23, 2018 and BBD...Read More
24 Apr 2018 Calling all Heroes! April 24, 2018 Brittany Thomas News, BE Project, Videos It's true what they say, "What starts here changes the world." Garland has enlisted the help of homet...Read More
13 Apr 2018 BBDF Welcomes Chase the Cure April 13, 2018 Brittany Thomas News BBDF Welcomes Chase the Cure to our family of donor advised funds. By pooling resources and connecting co...Read More
21 Mar 2018 Batten Families Gather at TCH for Research Update March 21, 2018 Brittany Thomas News For the first time in foundation history, affected families from all over the world gathered at the Jan a...Read More
21 Mar 2018 BBDF Partners with ThinkGenetic in Support of Mission March 21, 2018 Brittany Thomas News Spearheading a unique, cohesive strategy, Beyond Batten Disease Foundation has added ThinkGenetic to its...Read More
15 Mar 2018 Brineura Approval Invigorates Research, Awareness About Other Batten Treatments March 15, 2018 Brittany Thomas News Soon after the first-ever therapy for Batten disease was approved by the U.S. Food and Drug Administratio...Read More