13 Dec 2018 Dr. Marco Sardiello’s Research on Batten Disease Paves Way for New Treatments December 13, 2018 BeyondBatten News A team led by researchers at Baylor College of Medicine has uncovered an unexpected mechanism that can ex...Read More
12 Dec 2018 Thank You to FOX 7 News’s Amanda Salinas for Sharing Garland’s Story! December 12, 2018 BeyondBatten News Learn about Garland Benson's BE a Hero campaign to raise a million dollars to fund a treatment for his si...Read More
6 Dec 2018 Tree Planting December 6, 2018 BeyondBatten A Mother's Story On Saturday morning, the weather was perfect just long enough for the Bensons to share some beautiful wor...Read More
28 Nov 2018 Anyone Can Be A Hero November 28, 2018 BeyondBatten News Thank you to all who have supported Garland. $790,466 and counting to $1 million!...Read More
27 Sep 2018 Our Son Ollie – A Mother’s Story September 27, 2018 Brittany Thomas News, Family Stories by SUSIE EGR This is our handsome son, Oliver James Egr. He is a big piece of our "why” and our superher...Read More
24 Sep 2018 BBDF 101 – Next Steps to Clinical Trials September 24, 2018 Brittany Thomas News, BE Project In July, BBDF sponsored the Batten Disease Support and Research Association Family Conference where we ha...Read More
4 Sep 2018 August Update – Next Step to Clinical Trials September 4, 2018 Brittany Thomas News, BE Project With only four months to go BBDF and our Batten families are hard at work to fund the clinical trial! Tak...Read More
22 Aug 2018 Go Tyler! Beat Batten! – A Sister’s Story August 22, 2018 Brittany Thomas News, Family Stories by JAMIE KIM My brother, Tyler, has always been the most energetic happy little boy I have ever been a...Read More
25 Jul 2018 Pieced Together – A Mother’s Story July 25, 2018 Brittany Thomas News, Family Stories by AN ANONYMOUS BATTEN MOTHER I grew up in a family of story tellers. Every get together involved remi...Read More
16 Jul 2018 Defying Gravity by Joe Sikorra July 16, 2018 Brittany Thomas News Long time BBDF supporter, Joe Sikorra has published a book and dedicated a portion of the proceeds to BBD...Read More