BBDF Welcomes Delaney’s Dream
BBDF is proud to partner with Delaney’s Dream from West Virginia and welcomes them to our family of donor...
Battlin’ Batten in Baffin Fishing Tournament Exceeds $400,000 in Total Donations!
Friends and supporters of Beyond Batten Disease Foundation gathered on Sunday, April 7 for the 10th annua...
Inaugural Batten Bash is a Great Success!
The Jackson, MI community came out in strong support of Bind Up Batten’s inaugural Batten Bash fundraisin...
Get Involved: April Fundraising Events
There are ample opportunities during the month of April to get involved and support BBDF. Make sure to vi...
4th Annual Run to the Sun Fun Run Rescheduled for Friday, Feb. 22, 2019
Due to the weather conditions (being at or below freezing with wind chill and moisture), the Run to...
BBDF Welcomes Sophia’s Dream
BBDF welcomes Sofia's Dream to our family of donor advised funds. By connecting affected families and com...
Thank you from the Bensons
https://vimeo.com/313404207 Dear Friends, We would like to express our deepest gratitude for your...
4th Annual Run to the Sun – Feb 8
Join Austin Youth Fitness on February 8th for the 4th Annual Run to the Sun Fun Run benefiting Beyond Bat...
BE Project – Thank You from the Bensons
BE Project - Thank you from the Bensons from Beyond Batten Disease Foundation on Vimeo. In 2016, after...
We did it! Thank you from Garland
Dear Friends, Thank you so much for everything y’all have done for me and my family to get to my $...