18 Mar 2013 The Blind Vest March 18, 2013 BeyondBatten News, A Mother's Story Have you ever wondered what it would be like if the whole world knew your pain? Would you feel exposed or...Read More
10 Mar 2013 March 2013: Passion is our driver. Strategy is our compass. March 10, 2013 BeyondBatten News Passion is our driver. Strategy is our compass. With your support, Beyond Batten Disease Foundation (BBDF...Read More
28 Feb 2013 Collaborative CNS Screening Initiative February 28, 2013 BeyondBatten News, Press Releases Collaborative CNS Screening Initiative (CCSI) Aims to Share Knowledge and Speed Drug Discovery. The Alzhe...Read More
28 Feb 2013 Nonprofit Funders Unite to Accelerate Fight Against Batten Disease, Granting $1 Million for Research to Develop Treatment and Cure February 28, 2013 BeyondBatten News, Press Releases AUSTIN, TEXAS (February, 2013) The Batten Disease Support and Research Association (BDSRA) and Beyond Bat...Read More
28 Jan 2013 Faster DNA Testing Helps Diagnose Disease in NICU Babies January 28, 2013 BeyondBatten News by Alice Park on healthland.time.com Fifty hours. That’s how long it now takes to decode and interpret a...Read More
3 Jan 2013 Beyond the Valley of Death: A Strategic Path Toward a Cure for Batten disease January 3, 2013 BeyondBatten News Beyond Batten Disease Foundation is spearheading a unique, cohesive strategy that incorporates independen...Read More
11 Dec 2012 BBDF funded genetic test makes cover of TIME magazine December 11, 2012 BeyondBatten News ...Read More
5 Dec 2012 Featured Fundraiser December 5, 2012 BeyondBatten News On Sunday October 21st, 25 girls gathered in Grace and Brynley May's front yard to show support for one o...Read More
5 Dec 2012 A Mother’s Story December 5, 2012 BeyondBatten A Mother's Story With the holidays approaching, the children and I have decided to decorate our front yard with characters...Read More