Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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  • About Us

    • About the Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten

    • About Batten Disease

      • What is Batten?
      • Diagnosis/Symptoms
      • Prognosis
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    • Family Stories

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    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research

    • What We Know

      • State of the Science
      • CLN3 Gene
      • Screening

    • Foundation Driven

      • Our Strategy
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      • Batten-1

    • For Researchers

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      Beyond Batten Disease Foundation
      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
2 Dec 2013

Alzheimer’s Drug Discovery Foundation Expands its ADDF ACCESS Program to Improve Quality and Efficiency of Drug Research for Neurodegenerative Diseases

December 2, 2013
BeyondBatten
News, Press Releases
NEW YORK, NY, November 6, 2013 - The Alzheimer's Drug Discovery Foundation (ADDF) announced yesterday the...
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2 Dec 2013

The Jenyis Report

December 2, 2013
BeyondBatten
News
To view a comprehensive progress report of some of our proudest accomplishments over the past 5 years, pl...
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12 Nov 2013

October 2013

November 12, 2013
BeyondBatten
News
CLICK HERE...
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20 Oct 2013

Cheering for Kennedy: Freemont High girls share dreams, friendship with new teammate

October 20, 2013
BeyondBatten
News
by McKenzie Romero in Deseret News published October 20, 2013 PLAIN CITY, Weber County — From the momen...
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18 Oct 2013

Running blind toward the light

October 18, 2013
BeyondBatten
News
by Carolina in South Charlotte Weekly published October 18, 2013 Laura King Edwards has participated in...
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3 Oct 2013

Muddy Bogs and Steep Hills

October 3, 2013
BeyondBatten
A Mother's Story
Some say control is an illusion and if you want to make God laugh, tell Him your plan. Have you ever t...
Read More
20 Aug 2013

The Will Hendon Fund’s HOPE Under the Stars Celebrates 5th Anniversary and Raising Nearly $2 Million Locally for Juvenile Batten Disease

August 20, 2013
BeyondBatten
News, Press Releases
HOPE Under the Stars began as a grassroots event for The Will Herndon Fund for Juvenile Batten Disease Re...
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18 Jul 2013

Blind teen with fatal disorder goes ziplining, rafting

July 18, 2013
BeyondBatten
News
published July 18, 2013 Blind teen with fatal disorder goes ziplining, rafting...
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21 Jun 2013

June 2013

June 21, 2013
BeyondBatten
News
CLICK HERE...
Read More
14 Jun 2013

Who Will They Be?

June 14, 2013
BeyondBatten
A Mother's Story
I remember a little boy when I was young who was handicapped.  I don’ t remember his name, but I’ll never...
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Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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