By Darla Hernandez on WSBT 22
Published May 8, 2014
New challenge for teen stricken by deadly disease
“Tyler was fine until he was in 1st grade,” said Tyler’s mother, Heather. “He played t-ball, and then he started to lose his sight and have seizures.”Tyler is now blind and wheelchair bound. Weighing 140 pounds, lifting him in and out of their minivan has taken such a huge physical toll on his mother, she now has extensive nerve damage in her arms and needs surgery.
There have even been times when Heather and Tyler fell trying to get him into the vehicle.
“I sat there on the pavement and shed a few tears until I could physically get him back up,” Heather said.
The Allman family recently started an online campaign-to raise money for a wheelchair lift for their van.
Tyler’s father, Royer, said, “I worry about my wife and my son’s safety and her transporting him and safely, doing that when I’m not around.”
The Allmans say a lot of their medical expenses are not covered by insurance, including the van lift.
“To have a simple wheelchair lift put into our van, it was $28,000. We have so many other expenses and medical equipment we need to get,” added Heather.
Time is crucial for Tyler. The disease is rapidly taking away all of his mobility.
“Tyler’s disease has a life expectancy of late teens, early 20’s, and he’s 13 now, so we don’t know how much time we have,” Royer noted.
Anyone can make a donation at any Notre Dame Federal Credit Union Branch under the name “Team Tyler.”
To donate and learn more about Tyler’s daily fight: https://www.facebook.com/beyondbatten.org
For more information on Batten Disease and to see a special Allman family video: https://beyondbatten.org/family-stories/the-allman-family-story/
To read the article on WSBT 22, click here.