The Will Hendon Fund’s HOPE Under the Stars Celebrates 5th Anniversary and Raising Nearly $2 Million Locally for Juvenile Batten Disease
HOPE Under the Stars began as a grassroots event for The Will Herndon Fund for Juvenile Batten Disease Re...
Blind teen with fatal disorder goes ziplining, rafting
published July 18, 2013 Blind teen with fatal disorder goes ziplining, rafting...
Who Will They Be?
I remember a little boy when I was young who was handicapped. I don’ t remember his name, but I’ll never...
Ascend Learning Delivers Grant To Beyond Batten Disease Foundation
Ascend Learning announced it has delivered a $17,710 grant to Beyond Batten Disease Foundation (BBDF), an...
June 2013: BBDF partners with orphan drug specialists to establish path to treatment
We are in an exciting and hopeful place in Batten disease research history. Not very long ago, scientists...
Batten Disease Awareness Weekend 2013
Join Beyond Batten Disease Foundation June 1-2 in raising awareness and education about juvenile Batten d...
March 2013
CLICK HERE...
Nonprofit Hosting Third Annual Overnight Relay Run to the Sun Relay – April 20-21, 2013
Beyond Batten Disease Foundation is pleased to announce its 3rd Annual Run to the Sun Relay that will tak...