Teen battles deadly disease, family reaching out to Michiana
By Darla Hernandez on WSBT 22 Published May 8, 2014 New challenge for teen stricken by deadly disease T...
Cypress family fights to eradicate Batten disease
By Crystal Simmons in The Potpourri - Magnolia Edition Published April 21, 2014 In 1998, Luke Watson wa...
Longhorns Run Through the Night to Fight Rare Disease
By Chris O'Connell in Alcalde Published April 22, 2014 Christiane Benson is like any other 11-year-old....
Austin Teacher Uniting Staff with The Run to the Sun Relay to Support Student
By Alexa Harris in Austin Fit Magazine Published April 18, 2014 Later this month, a group of teachers f...
Overnight Relay from Enchanted Rock to Austin to Save Lives
In the Tarrytown Newsletter Published April 2014 Click here to view the newsletter...
Mark Shultz, Ph.D – BBDF’s first graduating doctor
Your generous donations are supporting inspiring and promising researchers who are committing their caree...
Local boy to be honored at relay to find cure for his fatal disease
published on March 25, 2014 in Woodlands Online THE WOODLANDS, Texas--Rarity is the greatest challenge o...
Beyond Batten Disease Foundation Announces Participation in 2nd Annual “Amplify Austin” Event
In 2008, local Austin couple Charlotte and Craig Benson received the devastating diagnosis that their the...
Aspiring politician aims to spread word on rare childhood diseases
by Stephanie Buckner in Cleveland Advocate published March 14, 2014 Juvenile Batten Disease is an extre...
February 2014
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