Be a Hero on Fox 7 Austin
An Austin 13-year-old is determined to find a cure for a rare & fatal disease in order to save his si...
FDA Meeting Update
In May BBDF had its first meeting with the FDA to get input and direction on our plan for clinical trials...
June Update – Only 6 months to go!
Only 6 months until we wrap up our first ever capital campaign to fund the treatment for juvenile Batten...
In the News!
2018 has been filled with fundraising, partnership and advocacy here at BBDF. With that said we wanted to...
BBDF and the Louise H. Batz Foundation bring you Family Night 2018!
In it's 4th year, the annual fall fundraiser, Family Night, is set for Sunday, September 23, 2018 and BBD...
Calling all Heroes!
It's true what they say, "What starts here changes the world." Garland has enlisted the help of homet...
BBDF Welcomes Chase the Cure
BBDF Welcomes Chase the Cure to our family of donor advised funds. By pooling resources and connecting co...
Batten Families Gather at TCH for Research Update
For the first time in foundation history, affected families from all over the world gathered at the Jan a...
BBDF Partners with ThinkGenetic in Support of Mission
Spearheading a unique, cohesive strategy, Beyond Batten Disease Foundation has added ThinkGenetic to its...
Brineura Approval Invigorates Research, Awareness About Other Batten Treatments
Soon after the first-ever therapy for Batten disease was approved by the U.S. Food and Drug Administratio...