Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
8 Oct 2014

Top Research Collaborations Explain How They Are Speeding the Path to Cures

October 8, 2014
BeyondBatten
News
By FasterCures Published October 8, 2014 WASHINGTON, DC--(Marketwired - Oct 8, 2014) - Thirty of the mo...
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25 Sep 2014

September 2014

September 25, 2014
BeyondBatten
News
CLICK HERE...
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25 Sep 2014

5th Grade Hope

September 25, 2014
BeyondBatten
A Mother's Story
Back to school always marks the end of summer with anticipation and excitement for a new season for child...
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24 Sep 2014

Beyond Batten Disease Foundation partners with NCL Foundation to award $344,742 to research team of Dr. Marco Sardiello, Baylor College of Medicine, Houston

September 24, 2014
BeyondBatten
News, Press Releases
As part of a larger $1.75M grant, BBDF continues to support Dr. Marco Sardiello’s research, investigating...
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5 Sep 2014

Making a difference: Beyond Batten Disease Foundation

September 5, 2014
BeyondBatten
News
By Amanda Koziel in Life in the Heights Published September 2014 The Beyond Batten Disease Foundation i...
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5 Sep 2014

Celebrating 5 Years of HOPE: Where There is Will, There is A Way Community gathers at annual HOPE Under the Stars Gala to Cure Fatal Disease

September 5, 2014
BeyondBatten
News
By Bob Gunner in The Paper Published September 4, 2014 THE WOODLANDS, TX (September 4, 2014) - No treat...
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6 Aug 2014

Emily Gimble Launches New Single for Beyond Batten Disease Foundation

August 6, 2014
BeyondBatten
News, Press Releases
Pianist, vocalist and newest member of Asleep at the Wheel, Emily Gimble has a brand new single, “Mighty...
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23 Jul 2014

The New York Stem Cell Foundation Partners with Beyond Batten Disease Foundation to Fight Juvenile Batten Disease

July 23, 2014
BeyondBatten
News, Press Releases
Batten Disease Support and Research Association collaborates to give families the opportunity to particip...
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23 May 2014

May 2014

May 23, 2014
BeyondBatten
News
CLICK HERE...
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22 May 2014

Reciprocity

May 22, 2014
BeyondBatten
A Mother's Story
Mother Theresa once said, “ We are all pencils in the hand of a writing God who is sending a love letter...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Categories

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  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
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Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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