Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

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      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
19 Dec 2014

November 2014

December 19, 2014
BeyondBatten
News
CLICK HERE...
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26 Nov 2014

Beyond Batten Year in Review, by Christiane Benson

November 26, 2014
BeyondBatten
News
...
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17 Nov 2014

Beyond Batten Disease Foundation and the New York Stem Cell Foundation Chosen as a National Innovator by the Milken Institute as They Partner to Find a Cure for Juvenile Batten Disease

November 17, 2014
BeyondBatten
News, Press Releases
The Battle is Personal for a Texas Father Who is Trying to Save His Own Daughter’s Life New York City,...
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3 Nov 2014

The Mission to Save Will Herndon

November 3, 2014
BeyondBatten
News
By Tish Williams in Houston Lifestyles & Homes Published November 1, 2014 The Community Has Con...
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22 Oct 2014

NYSCF Research Institute announces largest-ever stem cell repository

October 22, 2014
BeyondBatten
News
On Phys.org Published on October 22, 2014 The New York Stem Cell Foundation (NYSCF) Research Instit...
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22 Oct 2014

Hair Crafters holds 18th Annual ‘Cut for a Cause’ event

October 22, 2014
BeyondBatten
News
On WDNU.com  Published October 19, 2014 Blue extensions and $20 haircuts drew folks to Hair Crafters S...
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8 Oct 2014

Top Research Collaborations Explain How They Are Speeding the Path to Cures

October 8, 2014
BeyondBatten
News
By FasterCures Published October 8, 2014 WASHINGTON, DC--(Marketwired - Oct 8, 2014) - Thirty of the mo...
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25 Sep 2014

September 2014

September 25, 2014
BeyondBatten
News
CLICK HERE...
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25 Sep 2014

5th Grade Hope

September 25, 2014
BeyondBatten
A Mother's Story
Back to school always marks the end of summer with anticipation and excitement for a new season for child...
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24 Sep 2014

Beyond Batten Disease Foundation partners with NCL Foundation to award $344,742 to research team of Dr. Marco Sardiello, Baylor College of Medicine, Houston

September 24, 2014
BeyondBatten
News, Press Releases
As part of a larger $1.75M grant, BBDF continues to support Dr. Marco Sardiello’s research, investigating...
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Recent Posts

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3)
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3)
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care
  • THX Pharma, Biocodex and the Beyond Batten Disease Foundation Stand Together with the CLN3 Batten Community on International Batten Disease Awareness Day
  • THX Pharma and Biocodex announce a strategic licensing agreement covering three rare diseases.

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • THX Pharma and the Beyond Batten Disease Foundation Announce the Grant of a European Patent Protecting the Use of Batten-1 in Juvenile Batten Disease (CLN3) September 16, 2026
  • THX Pharma, BBDF and Biocodex Announce Regulatory Submissions for the Phase 3 Clinical Trial of Batten-1 in Juvenile Batten Disease (CLN3) September 4, 2026
  • BBDF-Funded Clinical Recommendations Mark a Major Milestone for CLN3 Disease Care July 16, 2026

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