Dr. Marco Sardiello’s Research on Batten Disease Paves Way for New Treatments
A team led by researchers at Baylor College of Medicine has uncovered an unexpected mechanism that can ex...
Thank You to FOX 7 News’s Amanda Salinas for Sharing Garland’s Story!
Learn about Garland Benson's BE a Hero campaign to raise a million dollars to fund a treatment for his si...
Tree Planting
On Saturday morning, the weather was perfect just long enough for the Bensons to share some beautiful wor...
Anyone Can Be A Hero
Thank you to all who have supported Garland. $790,466 and counting to $1 million!...
Our Son Ollie – A Mother’s Story
by SUSIE EGR This is our handsome son, Oliver James Egr. He is a big piece of our "why” and our superher...
BBDF 101 – Next Steps to Clinical Trials
In July, BBDF sponsored the Batten Disease Support and Research Association Family Conference where we ha...
August Update – Next Step to Clinical Trials
With only four months to go BBDF and our Batten families are hard at work to fund the clinical trial! Tak...
Go Tyler! Beat Batten! – A Sister’s Story
by JAMIE KIM My brother, Tyler, has always been the most energetic happy little boy I have ever been a...
Pieced Together – A Mother’s Story
by AN ANONYMOUS BATTEN MOTHER I grew up in a family of story tellers. Every get together involved remi...
Defying Gravity by Joe Sikorra
Long time BBDF supporter, Joe Sikorra has published a book and dedicated a portion of the proceeds to BBD...