Thank you from the Bensons
https://vimeo.com/313404207 Dear Friends, We would like to express our deepest gratitude for your...
4th Annual Run to the Sun – Feb 8
Join Austin Youth Fitness on February 8th for the 4th Annual Run to the Sun Fun Run benefiting Beyond Bat...
BE Project – Thank You from the Bensons
BE Project - Thank you from the Bensons from Beyond Batten Disease Foundation on Vimeo. In 2016, after...
We did it! Thank you from Garland
Dear Friends, Thank you so much for everything y’all have done for me and my family to get to my $...
Garland Benson Reaches His $1M Goal
We did it! Thank you from Garland from Beyond Batten Disease Foundation on Vimeo. Impassioned by his s...
RARE Webinar: An Educational Webinar for the Batten Disease Community
BBDF recently participated in an informational webinar hosted by Global Genes. Mary Beth Kiser, BBDF Pres...
Good Food, Good Times, and Good People at Honest Mary’s Fundraiser
Garland Benson was joined by family and friends as well as members of the community on Tuesday, Dec 18 fo...
Garland Benson Shares His Story on CBS News
Garland Benson shared his story with the world last night on CBS News, calling on each of us to help put...
Let’s Welcome Bianca and Her Son, Manuel, to the BBDF Community.
Bianca Vidal recently wrote to us and was kind enough to let us share her story. Let's give her and her s...
December Update – 22 Days and Oh So Close!!
The Be Project is Beyond Batten Disease Foundation's campaign to raise $6 million to fund the treatment a...