Rare Sisters Hosts First-Ever Expect Miracles 5K
Rare Sisters brought together a community of over 1,000 supporters on Sunday, April 28 for the fund's fir...
Austin Takes a Swing at Batten
Blue skies, sunshine, and near-perfect temperatures provided the ideal setting for the BBDF Youth Leaders...
Battlin’ Batten in Baffin Fishing Tournament Exceeds $400,000 in Total Donations!
Friends and supporters of Beyond Batten Disease Foundation gathered on Sunday, April 7 for the 11th annua...
Jon and Beth Fries Share Their Family’s Story on CBS Denver
Parents and Rare Sisters founders Jon and Beth Fries appeared on CBS Denver on Monday, April 8, where the...
BBDF Welcomes Delaney’s Dream
BBDF is proud to partner with Delaney’s Dream from West Virginia and welcomes them to our family of donor...
Battlin’ Batten in Baffin Fishing Tournament Exceeds $400,000 in Total Donations!
Friends and supporters of Beyond Batten Disease Foundation gathered on Sunday, April 7 for the 10th annua...
Inaugural Batten Bash is a Great Success!
The Jackson, MI community came out in strong support of Bind Up Batten’s inaugural Batten Bash fundraisin...
Get Involved: April Fundraising Events
There are ample opportunities during the month of April to get involved and support BBDF. Make sure to vi...
4th Annual Run to the Sun Fun Run Rescheduled for Friday, Feb. 22, 2019
Due to the weather conditions (being at or below freezing with wind chill and moisture), the Run to...
BBDF Welcomes Sophia’s Dream
BBDF welcomes Sofia's Dream to our family of donor advised funds. By connecting affected families and com...