Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
28 Aug 2020

BBDF-101 Announcement

August 28, 2020
BeyondBatten
Research, News, Press Releases
We are excited to announce the following major milestone for BBDF! The FDA has awarded Orphan Drug and R...
Read More
26 Aug 2020

The FDA awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundation for BBDF-101

August 26, 2020
BeyondBatten
Research, News
The FDA has awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundati...
Read More
4 Apr 2020

Danielle Kerkovich is Recognized

April 4, 2020
BeyondBatten
Research, News
BBDF's principal scientist, Danielle Kerkovich, recieves recognition for her paper as one of the most rea...
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18 Mar 2020

Judy and Courtney Stecker establish the Charles “Wheeler” Stecker Research Fund

March 18, 2020
BeyondBatten
News, Family Stories
Judy and Courtney Stecker establish the Charles "Wheeler" Stecker Research Fund to join forces in raising...
Read More
12 Dec 2019

BBDF-101 Announcement

December 12, 2019
BeyondBatten
Research, News, Press Releases
We are excited to announce the following major milestone for BBDF! Theranexus, a publicly-traded European...
Read More
7 Nov 2019

A Mother’s Story

November 7, 2019
BeyondBatten
A Mother's Story 2
Photo by Catherine Sanderson | catherinesanderson.comOn March 28, 2008, my husband Craig and I received t...
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14 Aug 2019

2nd Annual Bind Up Batten Golf Charity

August 14, 2019
BeyondBatten
News
Bind Up Batten brought together the community on July 20, 2019, for the 2nd Annual Batten Disease Golf Ch...
Read More
2 Jul 2019

We are Austin Interview with Garland Benson

July 2, 2019
BeyondBatten
News, BE Project
We Are Austin did an interview highlighting Garland Benson and the Be a Hero Campaign Check out his in...
Read More
21 May 2019

People Magazine: Garland’s One Million Dollar Story

May 21, 2019
BeyondBatten
News
People Magazine has just published an article highlighting Garland's quest to raise a million dollars for...
Read More
16 May 2019

Beyond Batten Funded Research Professor Awarded

May 16, 2019
BeyondBatten
Research, News
Congratulations to Marco Sardiello, Ph.D. Assistant Professor Molecular &Human Genetics Department, B...
Read More
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Categories

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  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
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Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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