BBDF-101 Announcement
We are excited to announce the following major milestone for BBDF! The FDA has awarded Orphan Drug and R...
The FDA awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundation for BBDF-101
The FDA has awarded Orphan Drug and Rare Pediatric Disease designations to Beyond Batten Disease Foundati...
Danielle Kerkovich is Recognized
BBDF's principal scientist, Danielle Kerkovich, recieves recognition for her paper as one of the most rea...
Judy and Courtney Stecker establish the Charles “Wheeler” Stecker Research Fund
Judy and Courtney Stecker establish the Charles "Wheeler" Stecker Research Fund to join forces in raising...
BBDF-101 Announcement
We are excited to announce the following major milestone for BBDF! Theranexus, a publicly-traded European...
A Mother’s Story
Photo by Catherine Sanderson | catherinesanderson.comOn March 28, 2008, my husband Craig and I received t...
2nd Annual Bind Up Batten Golf Charity
Bind Up Batten brought together the community on July 20, 2019, for the 2nd Annual Batten Disease Golf Ch...
We are Austin Interview with Garland Benson
We Are Austin did an interview highlighting Garland Benson and the Be a Hero Campaign Check out his in...
People Magazine: Garland’s One Million Dollar Story
People Magazine has just published an article highlighting Garland's quest to raise a million dollars for...
Beyond Batten Funded Research Professor Awarded
Congratulations to Marco Sardiello, Ph.D. Assistant Professor Molecular &Human Genetics Department, B...