Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

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      Beyond Batten Disease Foundation
      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
12 Jan 2011

Austin parents of terminally ill child behind discovery that could save many

January 12, 2011
BeyondBatten
News
by Mary Ann Roser in the Austin American Statesman published January 12, 2011 An Austin couple, on a qu...
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12 Jan 2011

New test can detect more than 500 genetic diseases

January 12, 2011
BeyondBatten
News
by Joseph Hall on healthzone.ca When his daughter was five, Craig Benson noticed she was inching nearer...
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12 Jan 2011

BBDF Announces the Development of a Carrier Screening Test to Prevent Nearly 450 Devastating Childhood Genetic Diseases

January 12, 2011
BeyondBatten
News, Press Releases
Study Published in Science Translational Medicine Shows the Average Person Carries 2.8 Gene Mutations Tha...
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30 Nov 2010

November 2010

November 30, 2010
BeyondBatten
News
CLICK HERE...
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26 Oct 2010

Thank you to our sponsors who went Above and Beyond

October 26, 2010
BeyondBatten
Add new tag News
A special THANK YOU to all the sponsors of Above and Beyond: An Evening of Hope, October 24, 2010. Paig...
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15 Sep 2010

September 2010

September 15, 2010
BeyondBatten
News
CLICK HERE...
Read More
14 Sep 2010

A Time to Inhale

September 14, 2010
BeyondBatten
A Mother's Story
Some things our children say are indelibly etched in our memories, word for word. They make us laugh, the...
Read More
12 Sep 2010

Paving the Path to Prevention: $2.5 million gift brings world famous researcher to Texas Children’s

September 12, 2010
BeyondBatten
News
by Sandra Bretting published in 2010 A recent $2.5 million gift to the Jan and Dan Duncan Neurological...
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19 Jul 2010

HOPE on the Green Charity Golf Tournament

July 19, 2010
BeyondBatten
News, Press Releases
Dear Friends, I would like to introduce you to our son, Will. He is an outgoing, green-eyed, 7-year old...
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1 Jul 2010

Rainbows

July 1, 2010
BeyondBatten
A Mother's Story
This summer, I spent some time hiking alone early in the morning while our family was on vacation visitin...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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