Father Fighting to End Batten Disease
Craig Benson and the Beyond Batten Disease Foundation were recently featured on My Fox Austin. Click here...
Run to the Sun Relay benefits children with Batten Disease
By KVUE staff on KVUE.com Published May 10, 2011 Batten Disease is a rare and fatal neurological diseas...
Family starts foundation, raises money to fight Batten disease
by Andrew Ball in the Austin American Statesman published May 8, 2011 Craig and Charlotte Benson had ne...
Run to the Sun
A year ago, Lance Thompson, our good friend and avid runner, came to us with an idea to organize a 100-mi...
Get Movin’ Monday: Beyond Batten Relay
On KTBC Fox 7 Published on May 3, 2011 Ryon Talbot of Pure Austin Fitness and Lance Thompson, a partici...
April 2011
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Relay Will Help Fight Batten Disease
On KTBC Fox 7 Published on April 25, 2011 The Run to the Sun Relay is a 90 mile race from Mt. Bonnell i...
Rare Disease Day
In honor of Rare Disease Day, the following retailers and businesses have signed on to donate a portion o...
New High-Tech Screen Takes Carrier Testing to the Next Level
by Jennifer Couzin-Frankel in Science Magazine published January 14, 2011 In the fall of 2008, Stephen K...
New Genetic Test Screens Would-Be Parents
by Nell Greenfieldboyce on NPR.org Listen to the story on All Things Considered on NPR published Januar...