Beyond Batten Disease Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
11 May 2012

Father Fighting to End Batten Disease – FOX 7 News Edge at 9

May 11, 2012
BeyondBatten
News
by Loriana Hernandez on FOX 7 News Edge at 9 Craig Benson is fighting to end Batten disease. Click here...
Read More
2 May 2012

Good Tired

May 2, 2012
BeyondBatten
News
by Kristin Armstrong in Runner's World There are all kinds of tired.  There's sick tired.  Frustrated ti...
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19 Apr 2012

Run to the Sun Relay helps children with Batten disease

April 19, 2012
BeyondBatten
News
By Melissa Gale on KVUE Published on April 19, 2012 If you are looking for a physical challenge and a w...
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12 Apr 2012

Tech fraternity hosts Robert Earl Keen concert to help Austin foundation

April 12, 2012
BeyondBatten
News
by Laura Waltzer in Lubbock Avalanche Journal published April 12, 2012 Texas Tech fraternity Sigma Nu w...
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29 Mar 2012

2nd Annual “Run to the Sun” Overnight Relay Expanded to Accommodate More Runners

March 29, 2012
BeyondBatten
News, Press Releases
Austin, TX -- March 28, 2012 Beyond Batten Disease Foundation today announced expansion of its “Run to th...
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16 Mar 2012

Run to the Sun overnight relay raises money for Beyond Batten

March 16, 2012
BeyondBatten
News
by Pamela LeBlanc on austin360.com published March 16, 2012 Imagine running under a full moon, through...
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25 Feb 2012

February 2012

February 25, 2012
BeyondBatten
News
CLICK HERE...
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20 Feb 2012

Recap: Beyond Batten Disease Foundation’s Date Night With Keith Urban

February 20, 2012
BeyondBatten
News
by Amanda Ivarra on Ask Miss A, Charity Meets Style published February 20, 2012 Like most people, I had...
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12 Feb 2012

Circuit of the Americas Brings in Significant Dollars for Local Charity

February 12, 2012
BeyondBatten
News
published February 12, 2012 This past Friday, Austin-based Beyond Batten Disease Foundation hosted a ben...
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8 Feb 2012

Date Night With Keith Urban Benefits Beyond Batten Disease Foundation

February 8, 2012
BeyondBatten
News
by Amanda Ivarra on Ask Miss A, Charity Meets Style published February 8, 2012 It is a rare and fatal n...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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  • A Mother's Story
  • BE Project
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Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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