The Blind Vest
Have you ever wondered what it would be like if the whole world knew your pain? Would you feel exposed or...
March 2013: Passion is our driver. Strategy is our compass.
Passion is our driver. Strategy is our compass. With your support, Beyond Batten Disease Foundation (BBDF...
Collaborative CNS Screening Initiative
Collaborative CNS Screening Initiative (CCSI) Aims to Share Knowledge and Speed Drug Discovery. The Alzhe...
Nonprofit Funders Unite to Accelerate Fight Against Batten Disease, Granting $1 Million for Research to Develop Treatment and Cure
AUSTIN, TEXAS (February, 2013) The Batten Disease Support and Research Association (BDSRA) and Beyond Bat...
Faster DNA Testing Helps Diagnose Disease in NICU Babies
by Alice Park on healthland.time.com Fifty hours. That’s how long it now takes to decode and interpret a...
Beyond the Valley of Death: A Strategic Path Toward a Cure for Batten disease
Beyond Batten Disease Foundation is spearheading a unique, cohesive strategy that incorporates independen...
December 2012
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Featured Fundraiser
On Sunday October 21st, 25 girls gathered in Grace and Brynley May's front yard to show support for one o...
A Mother’s Story
With the holidays approaching, the children and I have decided to decorate our front yard with characters...