Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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    • About Batten Disease

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
10 Jan 2014

Going social for Alzheimer’s research

January 10, 2014
BeyondBatten
News, Press Releases
by Jim Cirigliano in Drug Discovery News published January 10, 2014 NEW YORK—The Alzheimer’s Drug Disco...
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9 Jan 2014

Overnight run from Enchanted Rock to Austin to Save Lives

January 9, 2014
BeyondBatten
News, Press Releases
How far would you run to save a life? Ten miles? 26.2? Even 50? In late April, 25 teams of runners will r...
Read More
30 Dec 2013

“Don’t Let Disease Be Your Grinch This Christmas,” Says Mother of Patient with Batten Disease

December 30, 2013
BeyondBatten
News
"A Mother's Story" by Charlotte Benson republished by The Global Genes Project on December 21, 2013 Wit...
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16 Dec 2013

December 2013

December 16, 2013
BeyondBatten
News
CLICK HERE...
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2 Dec 2013

Alzheimer’s Drug Discovery Foundation Expands its ADDF ACCESS Program to Improve Quality and Efficiency of Drug Research for Neurodegenerative Diseases

December 2, 2013
BeyondBatten
News, Press Releases
NEW YORK, NY, November 6, 2013 - The Alzheimer's Drug Discovery Foundation (ADDF) announced yesterday the...
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2 Dec 2013

The Jenyis Report

December 2, 2013
BeyondBatten
News
To view a comprehensive progress report of some of our proudest accomplishments over the past 5 years, pl...
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12 Nov 2013

October 2013

November 12, 2013
BeyondBatten
News
CLICK HERE...
Read More
20 Oct 2013

Cheering for Kennedy: Freemont High girls share dreams, friendship with new teammate

October 20, 2013
BeyondBatten
News
by McKenzie Romero in Deseret News published October 20, 2013 PLAIN CITY, Weber County — From the momen...
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18 Oct 2013

Running blind toward the light

October 18, 2013
BeyondBatten
News
by Carolina in South Charlotte Weekly published October 18, 2013 Laura King Edwards has participated in...
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3 Oct 2013

Muddy Bogs and Steep Hills

October 3, 2013
BeyondBatten
A Mother's Story
Some say control is an illusion and if you want to make God laugh, tell Him your plan. Have you ever t...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Categories

  • Research
  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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