Taking Taylor’s story to Texas
By Josh Whitener in The South Charlotte Weekly Published on March 9, 2015 Laura King Edwards can n...
Woodlands family builds support to battle genetic disease
By Lindsay Peyton in The Woodlands Community Extra of The Houston Chronicle Published on February 25,...
Where There is a Will, There is a Way! Charities Partner at The Woodlands Marathon to Bring Hope to Children on World Rare Disease Day
THE WOODLANDS, TEXAS – Feb. 28. – Where there is a Will, there is a way! Meet the inspirational Will Hern...
Beyond Batten Disease Foundation of Texas and Brain Canada Launch New Partnership to Expand Network of Researchers Internationally
Austin, Texas– February 4, 2015 – Beyond Batten Disease Foundation (BBDF) https://beyondbatten.org and Bra...
November 2014
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Beyond Batten Disease Foundation and the New York Stem Cell Foundation Chosen as a National Innovator by the Milken Institute as They Partner to Find a Cure for Juvenile Batten Disease
The Battle is Personal for a Texas Father Who is Trying to Save His Own Daughter’s Life New York City,...
The Mission to Save Will Herndon
By Tish Williams in Houston Lifestyles & Homes Published November 1, 2014 The Community Has Con...
NYSCF Research Institute announces largest-ever stem cell repository
On Phys.org Published on October 22, 2014 The New York Stem Cell Foundation (NYSCF) Research Instit...
Hair Crafters holds 18th Annual ‘Cut for a Cause’ event
On WDNU.com Published October 19, 2014 Blue extensions and $20 haircuts drew folks to Hair Crafters S...