Beyond Batten Disease Foundation

Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.

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    • About the Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Understanding Batten
    • About Batten Disease

      • What is Batten?
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    • Contact Us

      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

  • Research
    • What We Know

      • State of the Science
      • CLN3 Gene
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      Beyond Batten Disease Foundation
      Phone: 512.275.2600
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    • UPCOMING EVENTS

  • A Mother’s Story
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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
16 Nov 2016

Austin BE First Party featured in Austin 360!

November 16, 2016
Brittany Thomas
News, BE Project
Beyond Batten. First, there’s the house. None other like it in Austin. Dimensional Fund head David Booth ...
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7 Apr 2016

Hugs for Hudson and BBDF Join Forces

April 7, 2016
BeyondBatten
News, Press Releases
For Immediate Release Contact: Mary Beth Kiser - 512-275-2600 - mbkiser@beyondbatten.org Amy Phillips -...
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10 Mar 2016

March 2016

March 10, 2016
BeyondBatten
News
CLICK HERE...
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14 Jan 2016

December 2015

January 14, 2016
BeyondBatten
News
CLICK HERE...
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2 Dec 2015

BBDF Funds Research at Cardiff University

December 2, 2015
BeyondBatten
News, Press Releases
November 16, 2015 - Austin, TX - Beyond Batten Disease Foundation is supporting research by Dr. Emyr Lloy...
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2 Dec 2015

BBDF Funds Researcher to Study Fundamentals of CLN3 Protein

December 2, 2015
BeyondBatten
News, Press Releases
October 19, 2015 - Austin, TX - Beyond Batten Disease Foundation (BBDF) has begun funding Susan Cotman, P...
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2 Dec 2015

October 2015

December 2, 2015
BeyondBatten
News
CLICK HERE...
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20 Oct 2015

Evotec and Beyond Batten Disease Foundation collaborate to advance emerging therapies to fight juvenile Batten Disease

October 20, 2015
BeyondBatten
News, Press Releases
Hamburg, Germany – 18 October 2015: Evotec AG (Frankfurt Stock Exchange: EVT, TecDAX, ISIN: DE0005664809)...
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5 Oct 2015

Beyond Batten Disease Foundation Kicks Off the First Family Night Fundraising Event at Schlitterbahn Waterpark and Sets the Second Event for September 2016

October 5, 2015
BeyondBatten
News, Press Releases
Austin, Texas – October 5, 2015– The Beyond Batten Disease Foundation celebrated a family-fun night at Sc...
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10 Aug 2015

Growing Up With a Deadline

August 10, 2015
BeyondBatten
News
By Maria Edible on Narratively Published on August 10, 2015 Sammie stares out the window, where the...
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Recent Posts

  • Theranexus Becomes THX Pharma: A Strategic Evolution Toward the Commercialization of Its Medicines for Rare Diseases
  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease

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Categories

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  • News
  • Press Releases
  • A Mother's Story
  • BE Project
  • Family Stories
  • Videos

Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus Becomes THX Pharma: A Strategic Evolution Toward the Commercialization of Its Medicines for Rare Diseases September 29, 2025
  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025

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