Hugs for Hudson and BBDF Join Forces
For Immediate Release Contact: Mary Beth Kiser - 512-275-2600 - mbkiser@beyondbatten.org Amy Phillips -...
March 2016
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December 2015
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BBDF Funds Research at Cardiff University
November 16, 2015 - Austin, TX - Beyond Batten Disease Foundation is supporting research by Dr. Emyr Lloy...
BBDF Funds Researcher to Study Fundamentals of CLN3 Protein
October 19, 2015 - Austin, TX - Beyond Batten Disease Foundation (BBDF) has begun funding Susan Cotman, P...
October 2015
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Evotec and Beyond Batten Disease Foundation collaborate to advance emerging therapies to fight juvenile Batten Disease
Hamburg, Germany – 18 October 2015: Evotec AG (Frankfurt Stock Exchange: EVT, TecDAX, ISIN: DE0005664809)...
Beyond Batten Disease Foundation Kicks Off the First Family Night Fundraising Event at Schlitterbahn Waterpark and Sets the Second Event for September 2016
Austin, Texas – October 5, 2015– The Beyond Batten Disease Foundation celebrated a family-fun night at Sc...
Growing Up With a Deadline
By Maria Edible on Narratively Published on August 10, 2015 Sammie stares out the window, where the...
This Austin Mom Is Helping The Fight Against Batten Disease
By Abby Roddel on Austin.com Published on July 24, 2015 Austin mom Charlotte Benson has a 12-year-o...