A Brother, A Sister and the Search for a Deadly Disease’s Cure
Below is an article that was written at the beginning of October. It's a great summary of G...
Texas First Lady Cecilia Abbott opens her home to BBDF
We would like to give our heartfelt gratitude to First Lady Cecilia Abbott for opening her home to allow...
Beyond Batten Disease Foundation Annual Report 2016/2017
BBDF's 2016/2017 Annual Report is filled with research updates, inspiration, donor recognition and highli...
Christiane’s Story by Texas Children’s Hospital
See the video that Texas Children's Hospital put out about Christiane and Beyond Batten Disease Foundatio...
New York Stem Cell Foundation and Beyond Batten Disease Foundation Announce the Availability of Stem Cell Lines for Research
The New York Stem Cell Foundation (NYSCF) and Beyond Batten Disease Foundation (BBDF) today announce the...
Research Update from Dr. Marco Sardiello
BBDF has partnered with Texas Children's Hospital (TCH) to provide informational videos on the...
May Newsletter
Take a look at our May Newsletter filled with event recaps, upcoming events in June and where we are toda...
February Newsletter 2017
Our supporters shared the love this February! Be sure and keep up with the Be Project by subscribing to o...
January Newsletter 2017
Keep up with the Be Project every month by subscribing to our monthly newsletter! JANUARY NEWSLETTER...
BBDF Recognized in O’Dwyers: The Power of Patient Voices
The Power of Patient Voices...