Beyond Batten Disease Foundation

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

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      Beyond Batten Disease Foundation:

      3305 Steck Ave., Suite 200
      Austin, TX 78757
      Phone: 512.275.2600
      info@beyondbatten.org

      Submit an Inquiry »

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Newsroom

Beyond Batten Disease Foundation  ⁄  Newsroom
14 Dec 2022

CONGRATULATIONS to the 2022 BDSRA Australia Research Grant Winners!

December 14, 2022
BeyondBatten
News
BBDF & BDSRA Australia are pleased to announce the winners of this year's Research Grant round, with...
Read More
6 Dec 2022

BBDF Sponsors BDSRA Australia’s 2022 Family Retreat

December 6, 2022
BeyondBatten
News
A big thank you to Batten Disease Support & Research Association Australia for letting BBDF be a part...
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6 Dec 2022

BBDF Sponsors NCL Congress

December 6, 2022
BeyondBatten
News
Thank you NCL Congress for allowing BBDF to be a sponsor this year as they gathered families, scientists,...
Read More
11 Oct 2022

Theranexus and BBDF Finalize Recruitment For Phase I/II Trial to Evaluate Batten-1 in Batten Disease

October 11, 2022
BeyondBatten
Research, News, Press Releases
Lyon, France – Austin, Texas, United States – 6 September 2022 – 6 pm CEST - Theranexus, a biopharmaceuti...
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27 Jul 2022

Craig Benson Interview with KHN

July 27, 2022
BeyondBatten
News
BBDF Co-Founder and Board Chair Craig Benson was interviewed by Kaiser Health News for a story focused on...
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28 Apr 2022

BBDF 101 Update

April 28, 2022
BeyondBatten
News, Press Releases
BBDF 101 Update Theranexus announced yesterday that it is now, more than ever, committed to support pati...
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3 Feb 2022

BBDF-101 PHASE I/II TRIAL UNDERWAY

February 3, 2022
BeyondBatten
Research, News, Press Releases
Lyon, France – Austin, TX, USA - 3 February 2022 – Theranexus, a biopharmaceutical company innovating in...
Read More
3 Jan 2022

Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten

January 3, 2022
BeyondBatten
News
The Beyond Batten Disease Foundation (BBDF) is sponsoring Care Beyond Diagnosis in its efforts to draft i...
Read More
15 Oct 2021

USNA Class of 1986 Fundraiser for Tyler’s Mission

October 15, 2021
BeyondBatten
Family Stories
USNA Class of 1986 Fundraiser for Tyler's Mission The weekend of 7-10 October marked the 35th Reunion fo...
Read More
27 Sep 2021

Beyond Batten Disease Foundation Announces Formal Sponsorship of Care Beyond Diagnosis

September 27, 2021
BeyondBatten
News, Press Releases
  Beyond Batten Disease foundation announces formal sponsorship of Care Beyond Diagnosis in effort...
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Recent Posts

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease
  • Family Research Calls – May 13 & 15
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients
  • Batten-1 May Preserve Vision with Juvenile Batten Disease
  • Update on the Theranexus’ Batten-1 project in CLN3 Batten’s disease

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Contact Us

  • 512.275.2600
  • info@beyondbatten.org
  • 3305 Steck Ave., Suite 200, Austin Texas, 78757

Connect With Us

What’s New?

  • Theranexus and Beyond Batten Disease Foundation Announce Strong Positive Real-World Data Supporting Batten-1 Efficacy for the Treatment of Batten Disease May 14, 2025
  • Family Research Calls – May 13 & 15 April 30, 2025
  • Batten Disease Global Research Initiative Announces Inaugural Grant Recipients April 10, 2025

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