CONGRATULATIONS to the 2022 BDSRA Australia Research Grant Winners!
BBDF & BDSRA Australia are pleased to announce the winners of this year's Research Grant round, with...
BBDF Sponsors BDSRA Australia’s 2022 Family Retreat
A big thank you to Batten Disease Support & Research Association Australia for letting BBDF be a part...
BBDF Sponsors NCL Congress
Thank you NCL Congress for allowing BBDF to be a sponsor this year as they gathered families, scientists,...
Theranexus and BBDF Finalize Recruitment For Phase I/II Trial to Evaluate Batten-1 in Batten Disease
Lyon, France – Austin, Texas, United States – 6 September 2022 – 6 pm CEST - Theranexus, a biopharmaceuti...
Craig Benson Interview with KHN
BBDF Co-Founder and Board Chair Craig Benson was interviewed by Kaiser Health News for a story focused on...
BBDF 101 Update
BBDF 101 Update Theranexus announced yesterday that it is now, more than ever, committed to support pati...
BBDF-101 PHASE I/II TRIAL UNDERWAY
Lyon, France – Austin, TX, USA - 3 February 2022 – Theranexus, a biopharmaceutical company innovating in...
Foundation Helps Sponsor Drafting of Guidelines for Juvenile Batten
The Beyond Batten Disease Foundation (BBDF) is sponsoring Care Beyond Diagnosis in its efforts to draft i...
USNA Class of 1986 Fundraiser for Tyler’s Mission
USNA Class of 1986 Fundraiser for Tyler's Mission The weekend of 7-10 October marked the 35th Reunion fo...
Beyond Batten Disease Foundation Announces Formal Sponsorship of Care Beyond Diagnosis
Beyond Batten Disease foundation announces formal sponsorship of Care Beyond Diagnosis in effort...