BBDF Awards largest research grant to study Juvenile Batten Disease
The Beyond Batten Disease Foundation awards the largest research grant ever made to study juvenile Batten...
Renowned Italian Researcher Dr. Andrea Ballabio Joins Texas Children’s Hospital Neurological Research Institute As Visiting Scientist in Medical Genetics
published September 30, 2009 Team to Focus New Gene Discovery on Developing a Therapy for Batten Disease...
BBDF co-sponsored the annual Batten Disease research conference
In June 2009, the Beyond Batten Disease Foundation co-sponsored the annual Batten Disease research confer...
NIH Announces New Program to Develop Therapeutics for Rare and Neglected Diseases
The National Institutes of Health is launching the first integrated, drug development pipeline to produce...
Called to Action
Kristin Armstrong from Runners World writes about running for a purpose. published May 8, 2009 "...Paige...
BBDF Mull Next-Gen Sequencing for Carrier Screening Test
Beyond Batten Disease Foundation Mull Next-Gen Sequencing for Carrier Screening Test published March 10,...
Texas Governor Rick Perry’s PSA on Batten Disease
View in YouTube...
Beyond Batten Disease Foundation Forms to Find Cure for Rare Children’s Disease
Test in Development to Prevent Hundreds of Other Orphan Diseases Austin, Texas – March 4, 2009 – Leading...
A Rare Disease, A Loving Father
A video of a family with two children with Batten disease. View in YouTube...